Chookapa

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      Chookapa
      Participant

        I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.

        I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.

        The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.

        Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.

        Chookapa
        Participant

          I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.

          I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.

          The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.

          Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.

          Chookapa
          Participant

            I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.

            I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.

            The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.

            Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.

            Chookapa
            Participant

              I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.

              I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.

              The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.

              Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.

              Chookapa
              Participant

                I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.

                I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.

                The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.

                Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.

                Chookapa
                Participant

                  I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.

                  I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.

                  The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.

                  Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.

                  Chookapa
                  Participant

                    I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.

                    I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.

                    The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.

                    Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.

                    Chookapa
                    Participant

                      I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.

                      I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.

                      The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.

                      Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.

                      Chookapa
                      Participant

                        I am being treated with AEB071 – 400 mg. twice a day. I have stage 4 ocular melanoma which has spread to my lungs. I have been on the trial for 9 months. I had a CT scan on 21st December which showed no progression of my disease, and my oncologist says that he would have expected spread if I were not taking the medicine.

                        I live near London and am a patient of Dr. James Larkin at the Royal Marsden Hospital.

                        The side effects are real but not too serious. Constipation, treated with co-danthramer (25mg Dantron and 200mg Pploxame) once daily. Mild nausea, controlled with anti emetics, and bright orange urine! I feel a bit tired, but whether this is due to the medicine or to my age (67) is hard to say. Much prererable to progressing disease, and I enjoy a high quality of life.

                        Go for it. I don't think that there is any other effective treatment for metastatic ocular melanoma, but the treatment is very specific to the mutation that is causing your cancer to spread, and I am probably very lucky to have the mutation(s) on which AEB071 is effective.

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