Oh ok. Thanks Janner. I've been freaking out waking up overnight with a swelling like that. I've gotten used to some of the bone tumors swelling gradually but not something like that. I wonder if mayo will do radiation on the tumor itself to try to knock its size down. Probably not the lymphs but the tumor I would think. I'm 2 for 2 with good radiation successes which is surprising since I read somewhere most peoples mel only responds a little to radiation and also re-radiating the same area usually doesn't work very well. So I've been lucky with it so far and side affects were minor the first time and none the 2nd. Plus we know radiation sometimes helps these immunotherapy meds work. I've had very little success with meds. I guess we shall see.
I heard from the mayo pd1 coordinator so I think it might be as soon as sometime late next week I'll get that pd1. So a little over 2 weeks from when I called them. Much easier than other trials I've heard people try to get into but this is a compassionate trial so probably the difference.
Again thanks for replying. I appreciate it.
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