WITom

Congrats Rocco!! That’s awesome – so happy for you and thanks for sharing. I’m especially interested as I am also a 10 mg ipi complete responder – NED 5+ yrs. Best wishes for a continued healthy 2018

Tom

I am a complete responder who was on 10 mg for total of 6 infusions – had to stop after 6th secondary to severe colitis, now 5+ yrs since start of ipi RX and 3.5 yrs NED – I pray your husbands upcoming scans continue to show NED status!

Tom

I am a complete responder who was on 10 mg for total of 6 infusions – had to stop after 6th secondary to severe colitis, now 5+ yrs since start of ipi RX and 3.5 yrs NED – I pray your husbands upcoming scans continue to show NED status!

Tom

I am a complete responder who was on 10 mg for total of 6 infusions – had to stop after 6th secondary to severe colitis, now 5+ yrs since start of ipi RX and 3.5 yrs NED – I pray your husbands upcoming scans continue to show NED status!

Tom

Congrats – so happy that your not only NED but also feeling great! I hope and pray this remains the case for very long time!

Tom

Congrats & so happy for both you and your husband! I am especially interested in your success as I am also an ipi 10 mg responder – NED since Nov 2012. 

Everyday is indeed a blessing!!

Tom

I am Braf + , I showed improvement in my initial scans after starting on ipi – don't remember how many weeks but I believe it was after the 2nd infusion. Hope the initial infusion went smoothly- best wishes Tom

I am Braf + , I showed improvement in my initial scans after starting on ipi – don't remember how many weeks but I believe it was after the 2nd infusion. Hope the initial infusion went smoothly- best wishes Tom

I am Braf + , I showed improvement in my initial scans after starting on ipi – don't remember how many weeks but I believe it was after the 2nd infusion. Hope the initial infusion went smoothly- best wishes Tom

Liza – I had widespread multiple mets including lesions in the liver, thyroid, lung parenchyma, adjacent to both kidneys, various lymph nodes and some subcutaneous. My onc said my scans lit up like a Christmas tree – not good. Fortunately no brain mets. I am very fortunate to be one of those who responded really well to the Ipi. 

Tom

Liza – I had widespread multiple mets including lesions in the liver, thyroid, lung parenchyma, adjacent to both kidneys, various lymph nodes and some subcutaneous. My onc said my scans lit up like a Christmas tree – not good. Fortunately no brain mets. I am very fortunate to be one of those who responded really well to the Ipi. 

Tom

Liza – I had widespread multiple mets including lesions in the liver, thyroid, lung parenchyma, adjacent to both kidneys, various lymph nodes and some subcutaneous. My onc said my scans lit up like a Christmas tree – not good. Fortunately no brain mets. I am very fortunate to be one of those who responded really well to the Ipi. 

Tom

Liza – I was in the same clinical trial as Gene (different location) but in the ipi only arm (no GSFM). My timeline is very similar to his by a few months both in regards to start of treatment and reaching NED status. Ipi has been my only treatment. I am Braf+. In regards to side effects I experienced severe/prolonged colitis. I remain NED 4+ years. Keeping you & your partner in my prayers 

Tom

Liza – I was in the same clinical trial as Gene (different location) but in the ipi only arm (no GSFM). My timeline is very similar to his by a few months both in regards to start of treatment and reaching NED status. Ipi has been my only treatment. I am Braf+. In regards to side effects I experienced severe/prolonged colitis. I remain NED 4+ years. Keeping you & your partner in my prayers 

Tom

Liza – I was in the same clinical trial as Gene (different location) but in the ipi only arm (no GSFM). My timeline is very similar to his by a few months both in regards to start of treatment and reaching NED status. Ipi has been my only treatment. I am Braf+. In regards to side effects I experienced severe/prolonged colitis. I remain NED 4+ years. Keeping you & your partner in my prayers 

Tom