Willowcaregiver

Thanks for sharing, I am glad you are stable, it gives me more hope! His were 11 days apart. It was 1 week today, since his 2nd one. He was pretty pumped up on steriods and pain meds too for the first few days, but they tapered him off the dex pretty fast. The past couple days he has mostly slept. His dr. Plans to do SRS Radiation to the area of the resected bleeds/tumors and the 1 remaining lesion in about 4 weeks. They want to resume pembro and temodar as soon as possible too. Did you take the temodar? Do/did you have tumors elsewhere in your body?

He is not braf positive and he was having pembro infusions and taking temodar on a 21 day cycle until about 9 weeks ago when labs and ulcerative colitis hospitalized him. I think they plan to resume those once his toxicity from the drugs is back at a safe level again. I am just wondering if anyone else had had 2 bleeding lesions so close together because the surgeon said it was so rare.