Tina2016

Thanks for all of your posts! I did receive a 2nd opinion but decided to have the CLND done by the initial surgical oncologist. I needed confirmation that the procedure was still the standard of care. I also contacted MSK and Moffitt and they were both very helpful with maling my decision. The other remaining lymph nodes were benign.

It has been just over 4 weeks since my surgery.  I continue to have between 60 to 90 CC of output daily so I still have the drainage tube in. I am trying not to rush having it taken out because I don't want to end up with a seroma.

My medical oncologist suggested further systemic treatment and I have been researching clinical trials. The MRF has a Clinical Trial Finder form that I used and they also assigned me to a person as well. It has helped to narrow the field down but it is still a very confusing process!

I understand there are professions where you can actually hire people to help find trials for you? I have tried to research that online but I can only come up with jobs available for research coordinators. Has anyone heard of this?

Thanks for all of your posts! I did receive a 2nd opinion but decided to have the CLND done by the initial surgical oncologist. I needed confirmation that the procedure was still the standard of care. I also contacted MSK and Moffitt and they were both very helpful with maling my decision. The other remaining lymph nodes were benign.

It has been just over 4 weeks since my surgery.  I continue to have between 60 to 90 CC of output daily so I still have the drainage tube in. I am trying not to rush having it taken out because I don't want to end up with a seroma.

My medical oncologist suggested further systemic treatment and I have been researching clinical trials. The MRF has a Clinical Trial Finder form that I used and they also assigned me to a person as well. It has helped to narrow the field down but it is still a very confusing process!

I understand there are professions where you can actually hire people to help find trials for you? I have tried to research that online but I can only come up with jobs available for research coordinators. Has anyone heard of this?

Thanks for all of your posts! I did receive a 2nd opinion but decided to have the CLND done by the initial surgical oncologist. I needed confirmation that the procedure was still the standard of care. I also contacted MSK and Moffitt and they were both very helpful with maling my decision. The other remaining lymph nodes were benign.

It has been just over 4 weeks since my surgery.  I continue to have between 60 to 90 CC of output daily so I still have the drainage tube in. I am trying not to rush having it taken out because I don't want to end up with a seroma.

My medical oncologist suggested further systemic treatment and I have been researching clinical trials. The MRF has a Clinical Trial Finder form that I used and they also assigned me to a person as well. It has helped to narrow the field down but it is still a very confusing process!

I understand there are professions where you can actually hire people to help find trials for you? I have tried to research that online but I can only come up with jobs available for research coordinators. Has anyone heard of this?