SMacBosch

An update: I was emailing back and forth with the oncologist today (he gave me his personal email address 🙂 ) and it appears I misheard him. He will be using Keytruda, not Yervoy.

Although, how I misheard, I'm not sure since I was familiar with both names prior to our discussion. But, we had just been told our '6 months to a year window' was closing down to 2 months just moments before so quite possible something in my brain misfired. 

An update: I was emailing back and forth with the oncologist today (he gave me his personal email address 🙂 ) and it appears I misheard him. He will be using Keytruda, not Yervoy.

Although, how I misheard, I'm not sure since I was familiar with both names prior to our discussion. But, we had just been told our '6 months to a year window' was closing down to 2 months just moments before so quite possible something in my brain misfired. 

An update: I was emailing back and forth with the oncologist today (he gave me his personal email address 🙂 ) and it appears I misheard him. He will be using Keytruda, not Yervoy.

Although, how I misheard, I'm not sure since I was familiar with both names prior to our discussion. But, we had just been told our '6 months to a year window' was closing down to 2 months just moments before so quite possible something in my brain misfired. 

Thanks so much, Tim! I will be sure to pass along those names to the medical oncologist! He seems like the type who would be open to input from sources with some experience.

Sandra

Thanks so much, Tim! I will be sure to pass along those names to the medical oncologist! He seems like the type who would be open to input from sources with some experience.

Sandra

Thanks so much, Tim! I will be sure to pass along those names to the medical oncologist! He seems like the type who would be open to input from sources with some experience.

Sandra

I have heard good things about Keytruda and Opdivo. Thanks for the reminder. I will be sure to mention those options to the oncologist.

The oncologist is in touch with my husband's lupus specialist and they have discussed options, There really aren't enough applicable stats, unfortunately. We just know it is very dangerous, which is why it was left as a last ditch effort. I have asked that they do monitor him very closely for any adverse reactions during and following immunotherapy.

I have heard good things about Keytruda and Opdivo. Thanks for the reminder. I will be sure to mention those options to the oncologist.

The oncologist is in touch with my husband's lupus specialist and they have discussed options, There really aren't enough applicable stats, unfortunately. We just know it is very dangerous, which is why it was left as a last ditch effort. I have asked that they do monitor him very closely for any adverse reactions during and following immunotherapy.

I have heard good things about Keytruda and Opdivo. Thanks for the reminder. I will be sure to mention those options to the oncologist.

The oncologist is in touch with my husband's lupus specialist and they have discussed options, There really aren't enough applicable stats, unfortunately. We just know it is very dangerous, which is why it was left as a last ditch effort. I have asked that they do monitor him very closely for any adverse reactions during and following immunotherapy.

Unfortunately, he was BRAF negative at the primary site and in the mets. They tested both as it has changed in other cases.

Thanks for the links to further info. I will check those out.

Sandra

Unfortunately, he was BRAF negative at the primary site and in the mets. They tested both as it has changed in other cases.

Thanks for the links to further info. I will check those out.

Sandra

Unfortunately, he was BRAF negative at the primary site and in the mets. They tested both as it has changed in other cases.

Thanks for the links to further info. I will check those out.

Sandra