scragfinch

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      scragfinch
      Participant
        Thank you Nigel. I live in London so not a problem. I have been in touch with Prof Thomas at the Royal Marsden re joining their lymph node ultrasound trial but got told on Friday I am not eligible as I have already had WLE. I see my consultant tomorrow and will mention the places you emailed about to see if I can get ultrasound at one of them. Thanks Nigel.
        scragfinch
        Participant
          Thank you Nigel. I live in London so not a problem. I have been in touch with Prof Thomas at the Royal Marsden re joining their lymph node ultrasound trial but got told on Friday I am not eligible as I have already had WLE. I see my consultant tomorrow and will mention the places you emailed about to see if I can get ultrasound at one of them. Thanks Nigel.
          scragfinch
          Participant
            Thank you Nigel. I live in London so not a problem. I have been in touch with Prof Thomas at the Royal Marsden re joining their lymph node ultrasound trial but got told on Friday I am not eligible as I have already had WLE. I see my consultant tomorrow and will mention the places you emailed about to see if I can get ultrasound at one of them. Thanks Nigel.
            scragfinch
            Participant
              Hi squash. Doctors in the uk tend to think it doesn’t help survival rate but to be honest I don’t really understand it as surely it increases your survival chances if you catch it early. If nothing else it might prompt things like pet scans which could spot something early.
              scragfinch
              Participant
                Hi squash. Doctors in the uk tend to think it doesn’t help survival rate but to be honest I don’t really understand it as surely it increases your survival chances if you catch it early. If nothing else it might prompt things like pet scans which could spot something early.
                scragfinch
                Participant
                  Hi squash. Doctors in the uk tend to think it doesn’t help survival rate but to be honest I don’t really understand it as surely it increases your survival chances if you catch it early. If nothing else it might prompt things like pet scans which could spot something early.
                  scragfinch
                  Participant
                    Hi Melissa. Hope you stay healthy for many many years to come. How thick was your tumour?
                    scragfinch
                    Participant
                      Hi Melissa. Hope you stay healthy for many many years to come. How thick was your tumour?
                      scragfinch
                      Participant
                        Hi Melissa. Hope you stay healthy for many many years to come. How thick was your tumour?
                        scragfinch
                        Participant
                          Thanks but I’ve been told I’m not eligible for ultrasound of lymph nodes as I’ve already had the wide excision. I’m not totally clear as to why. I feel at a dead end in terms of investigating. I read I have an 8 percent chance of a melanoma this thick having spread and killed me within 5 years. I’m visiting my sister in Italy in October and she’s got me an appointment with an oncologist there. My medical insurance won’t cover it plus I’m not sure what he will be able to do without scans. I only have a wide excision scar to show. I don’t even have my pathology results. I get my wide excision results on Monday. Many do doctors on this side of the Atlantic believe lymph node biopsy often has complications for the patient and statistically leads to no better outcome. Not sure how those stats are worked out as I would have thought finding spread to lymph nodes early would increase your survival rate. Confused.
                          scragfinch
                          Participant
                            Thanks but I’ve been told I’m not eligible for ultrasound of lymph nodes as I’ve already had the wide excision. I’m not totally clear as to why. I feel at a dead end in terms of investigating. I read I have an 8 percent chance of a melanoma this thick having spread and killed me within 5 years. I’m visiting my sister in Italy in October and she’s got me an appointment with an oncologist there. My medical insurance won’t cover it plus I’m not sure what he will be able to do without scans. I only have a wide excision scar to show. I don’t even have my pathology results. I get my wide excision results on Monday. Many do doctors on this side of the Atlantic believe lymph node biopsy often has complications for the patient and statistically leads to no better outcome. Not sure how those stats are worked out as I would have thought finding spread to lymph nodes early would increase your survival rate. Confused.
                            scragfinch
                            Participant
                              Thanks but I’ve been told I’m not eligible for ultrasound of lymph nodes as I’ve already had the wide excision. I’m not totally clear as to why. I feel at a dead end in terms of investigating. I read I have an 8 percent chance of a melanoma this thick having spread and killed me within 5 years. I’m visiting my sister in Italy in October and she’s got me an appointment with an oncologist there. My medical insurance won’t cover it plus I’m not sure what he will be able to do without scans. I only have a wide excision scar to show. I don’t even have my pathology results. I get my wide excision results on Monday. Many do doctors on this side of the Atlantic believe lymph node biopsy often has complications for the patient and statistically leads to no better outcome. Not sure how those stats are worked out as I would have thought finding spread to lymph nodes early would increase your survival rate. Confused.
                              scragfinch
                              Participant
                                Thanks Ed and everyone else. I agree you have to push and take responsibility for your own care. Can anyone recommend a first rate specialist in melanoma in London? Thanks.
                                scragfinch
                                Participant
                                  Thanks Ed and everyone else. I agree you have to push and take responsibility for your own care. Can anyone recommend a first rate specialist in melanoma in London? Thanks.
                                  scragfinch
                                  Participant
                                    Thanks Ed and everyone else. I agree you have to push and take responsibility for your own care. Can anyone recommend a first rate specialist in melanoma in London? Thanks.
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