ScagMom

Sounds like God is truly walking with you on this! Thank you for the encouraging report, I am StageIV as well. I understand your apprehension to the doctors not seeing you as often, but I agree, you are at the top hospital in the country and they are an excellent melanoma hospital as well. Perhaps the doctors will appease you and give you scans at 4 months instead of 6? I completely understand your fear of the possibility of something growing during the 6 months, if I was in your shoes I probably would ask for less time between scans, at least for the next year.
God Bless ~ ScagMom

Sounds like God is truly walking with you on this! Thank you for the encouraging report, I am StageIV as well. I understand your apprehension to the doctors not seeing you as often, but I agree, you are at the top hospital in the country and they are an excellent melanoma hospital as well. Perhaps the doctors will appease you and give you scans at 4 months instead of 6? I completely understand your fear of the possibility of something growing during the 6 months, if I was in your shoes I probably would ask for less time between scans, at least for the next year.
God Bless ~ ScagMom

Sounds like God is truly walking with you on this! Thank you for the encouraging report, I am StageIV as well. I understand your apprehension to the doctors not seeing you as often, but I agree, you are at the top hospital in the country and they are an excellent melanoma hospital as well. Perhaps the doctors will appease you and give you scans at 4 months instead of 6? I completely understand your fear of the possibility of something growing during the 6 months, if I was in your shoes I probably would ask for less time between scans, at least for the next year.
God Bless ~ ScagMom

I’m going on 4 months straight of being on Zelboraf. At first the 940mg was too hard on my body and I had to stop it twice. Now I’m on 720mg plus 5mg of Prednisone and doing much better. My main side effects were extreme sun sensitivity, joint pain, extreme body rash, tender bottoms of my feet (to the point I hobble), and erythema nodosum – painful red bumps that appear for about a week randomly on my arms and legs. The joint pain and body rash are just about under control thanks to the Prednisone but I still have the red bumps appearing, bottom of the foot (the padding of my feet) pain, and the extreme sun sensitivity.
My oncologist is pleased so far with my body’s reaction to the Zelboraf. All my tumors have stopped growing and some have started to shrink.
Best of luck ~ ScagMom

I’m going on 4 months straight of being on Zelboraf. At first the 940mg was too hard on my body and I had to stop it twice. Now I’m on 720mg plus 5mg of Prednisone and doing much better. My main side effects were extreme sun sensitivity, joint pain, extreme body rash, tender bottoms of my feet (to the point I hobble), and erythema nodosum – painful red bumps that appear for about a week randomly on my arms and legs. The joint pain and body rash are just about under control thanks to the Prednisone but I still have the red bumps appearing, bottom of the foot (the padding of my feet) pain, and the extreme sun sensitivity.
My oncologist is pleased so far with my body’s reaction to the Zelboraf. All my tumors have stopped growing and some have started to shrink.
Best of luck ~ ScagMom

I’m going on 4 months straight of being on Zelboraf. At first the 940mg was too hard on my body and I had to stop it twice. Now I’m on 720mg plus 5mg of Prednisone and doing much better. My main side effects were extreme sun sensitivity, joint pain, extreme body rash, tender bottoms of my feet (to the point I hobble), and erythema nodosum – painful red bumps that appear for about a week randomly on my arms and legs. The joint pain and body rash are just about under control thanks to the Prednisone but I still have the red bumps appearing, bottom of the foot (the padding of my feet) pain, and the extreme sun sensitivity.
My oncologist is pleased so far with my body’s reaction to the Zelboraf. All my tumors have stopped growing and some have started to shrink.
Best of luck ~ ScagMom