ryanbkyle

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      • July 31, 2017 at 5:42 pm
      ryanbkyle
      Participant

        I have finished four doses of Yervoy, and had some fatigue and itching after the second and third doses.  After my 4th dose I became very fatigued, actually nodding off in meetings at work.  I also had some tingling in my fingertips and headaches.  I went to the doctor immediately to find out that that my pituitary gland stopped working and am now on thyroid and steroid medications for the rest of my life.  Such a catch 22.  I now wonder what the long-term effects on my body will be from these medications. I just started them two weeks ago and feel much better.

        • March 21, 2017 at 2:22 pm
        ryanbkyle
        Participant

          I am 3A as well, but am doing the Ipilumimab treatments.  I had my first infusion last week.

          • February 23, 2017 at 8:30 pm
          ryanbkyle
          Participant

            That's great news for you, and very encouraging to others at the same time.  I'm so happy for you.

            • February 23, 2017 at 8:30 pm
            ryanbkyle
            Participant

              That's great news for you, and very encouraging to others at the same time.  I'm so happy for you.

              • February 23, 2017 at 2:10 pm
              ryanbkyle
              Participant

                I am scheduled for a gallbladder surgery March 3, and after everything I've been through in the last few weeks, I think I'm going to cancel.  IIn my mind, it's not an emergency.  I don't have a lot of pain or other side effects at this point.  I feel that I've been managing it with my diet.  Like you, I am worried about my immune system too.  I will check with my oncologist about it today when I see him, and let you know. 

                • February 23, 2017 at 2:04 pm
                ryanbkyle
                Participant

                  Thank you all for your support, comments and advice.  I'm meeting with the oncologist today who will review the treatment options with me.  I'll let you know how it goes. 

                   

                    • February 23, 2017 at 8:27 pm
                    ryanbkyle
                    Participant

                      Met with the onc today.  Will not be doing the CLND.  Am doing the IPI treatment and hoping for the best.

                    • February 19, 2018 at 7:21 pm
                    ryanbkyle
                    Participant

                      Thank you for your response.  I found another lump this past weekend near the original site. It's the size of a marble, and I'm having some back pain now as well.  I have an appointment with the dermatologist tomorrow (she is at the cancer hospital I go to).  I'm guessing though that I now have Stage IV melanoma.  I'm very scared that this is a death sentence for me.

                      • August 15, 2017 at 3:38 pm
                      ryanbkyle
                      Participant

                        I only had Yervoy.

                         

                        • June 14, 2017 at 4:00 pm
                        ryanbkyle
                        Participant

                          Hi — I have several moles that looks like this, but my dermatologist and oncologist are not concerned with them at this point.  But that said, if you are uncomfortable with them, you should definitely pursue seeing a dermatologist.  You need to be an advocate for yourself, always.

                          • February 27, 2017 at 4:39 pm
                          ryanbkyle
                          Participant

                            Thank you!

                            • February 24, 2017 at 7:33 pm
                            ryanbkyle
                            Participant

                              Good luck with your surgery!  I'm putting my surgery on hold for now, since it's not really an emergency in my case.  Take care.

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