Ross's.Mom

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      Ross’s.Mom
      Participant

        Thank you so much, Niki. This information is very, very helpful. I am conflicted because we saw a melanoma specialist at Uof I, but our son is only his 3rd pediatric case in 10 years. He said to us, it didn't matter Ross was a pediatric patient, "Melanoma is melanoma." But from what I have researched online, which I know is not always correct, childhood melanoma may act differently in kids than adults. I just want to speak with someone that has more experience before I can feel completely at ease. We just have so many questions about going forward and "what now" that I want someone that is a ped onc- melanoma specialty- to answer. I sent an email to St. Jude's melanoma referral email and am anxiously awaiting to hear back. Thank you again for taking time to respond!

        -April

        Ross’s.Mom
        Participant

          Thank you so much, Niki. This information is very, very helpful. I am conflicted because we saw a melanoma specialist at Uof I, but our son is only his 3rd pediatric case in 10 years. He said to us, it didn't matter Ross was a pediatric patient, "Melanoma is melanoma." But from what I have researched online, which I know is not always correct, childhood melanoma may act differently in kids than adults. I just want to speak with someone that has more experience before I can feel completely at ease. We just have so many questions about going forward and "what now" that I want someone that is a ped onc- melanoma specialty- to answer. I sent an email to St. Jude's melanoma referral email and am anxiously awaiting to hear back. Thank you again for taking time to respond!

          -April

          Ross’s.Mom
          Participant

            Thank you so much, Niki. This information is very, very helpful. I am conflicted because we saw a melanoma specialist at Uof I, but our son is only his 3rd pediatric case in 10 years. He said to us, it didn't matter Ross was a pediatric patient, "Melanoma is melanoma." But from what I have researched online, which I know is not always correct, childhood melanoma may act differently in kids than adults. I just want to speak with someone that has more experience before I can feel completely at ease. We just have so many questions about going forward and "what now" that I want someone that is a ped onc- melanoma specialty- to answer. I sent an email to St. Jude's melanoma referral email and am anxiously awaiting to hear back. Thank you again for taking time to respond!

            -April

            Ross’s.Mom
            Participant

              Thank you!

              Ross’s.Mom
              Participant

                Thank you!

                Ross’s.Mom
                Participant

                  Thank you!

                  Ross’s.Mom
                  Participant

                    Thank you!

                     

                    Ross’s.Mom
                    Participant

                      Thank you!

                       

                      Ross’s.Mom
                      Participant

                        Thank you!

                         

                        Ross’s.Mom
                        Participant

                          And that is another question- they never gave us a clear staging or classification of his specific type of melanoma. Does the Stage T3a from original biopsy have anything to do with the staging now? Right. It totally does not feel right to do nothing. It's been a month of high anxiety and worry and running every possible scenario through our heads… and now it's just dropped. I need to decompress. sad

                          Ross’s.Mom
                          Participant

                            And that is another question- they never gave us a clear staging or classification of his specific type of melanoma. Does the Stage T3a from original biopsy have anything to do with the staging now? Right. It totally does not feel right to do nothing. It's been a month of high anxiety and worry and running every possible scenario through our heads… and now it's just dropped. I need to decompress. sad

                            Ross’s.Mom
                            Participant

                              And that is another question- they never gave us a clear staging or classification of his specific type of melanoma. Does the Stage T3a from original biopsy have anything to do with the staging now? Right. It totally does not feel right to do nothing. It's been a month of high anxiety and worry and running every possible scenario through our heads… and now it's just dropped. I need to decompress. sad

                              Ross’s.Mom
                              Participant

                                Thank you for taking the time to reply to me. This has been such an emotional, anxiety filled world we have been thrown into this past month. I am curious about immunotherapy, and any other testing or scans going forward. We are currently in the process of seeking out a second opinion of any treatment for Ross going forward now that surgery is done and he has clear margins and no spread to lymph nodes. The answer may be no "no further treatment" but we feel better hearing that from someone that specializes in ped melanoma- he is his current's Dr.'s 3rd case in 10 years! Sending love and prayers to you and your whole family as you fight too! 

                                Ross’s.Mom
                                Participant

                                  Thank you for taking the time to reply to me. This has been such an emotional, anxiety filled world we have been thrown into this past month. I am curious about immunotherapy, and any other testing or scans going forward. We are currently in the process of seeking out a second opinion of any treatment for Ross going forward now that surgery is done and he has clear margins and no spread to lymph nodes. The answer may be no "no further treatment" but we feel better hearing that from someone that specializes in ped melanoma- he is his current's Dr.'s 3rd case in 10 years! Sending love and prayers to you and your whole family as you fight too! 

                                  Ross’s.Mom
                                  Participant

                                    Thank you for taking the time to reply to me. This has been such an emotional, anxiety filled world we have been thrown into this past month. I am curious about immunotherapy, and any other testing or scans going forward. We are currently in the process of seeking out a second opinion of any treatment for Ross going forward now that surgery is done and he has clear margins and no spread to lymph nodes. The answer may be no "no further treatment" but we feel better hearing that from someone that specializes in ped melanoma- he is his current's Dr.'s 3rd case in 10 years! Sending love and prayers to you and your whole family as you fight too! 

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