Firstly sincere apologies for having disappeared for nearly 2 years. When I’ve seen this on Melanoma boards historically I’ve suspected the worst.
I was pulled off the trial after the second infusion because of toxicity and admitted to hospital with grade 4 symptoms. After two months of steroid treatment my first scan showed a marked improvement.
my second scan at 6 months showed some minor progression and I was started on Pembrolizumab. I stayed on this for another 5 months and stopped because of multiple immune related adverse effects particularly arthritis. I have now been off immunotherapy for a year and have had surgery to clear my axilla, radiotherapy to prevent local recurrence and most recently surgery to remove my one remaining lung met.
To anyone considering immunotherapy I can only be encouraging despite the trials of the past year. I feel very fortunate to have developed this terrible disease at this time.
I will continue to update.
