Rexpo

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      Rexpo
      Participant

        i had one treatment of IPI/NIVO, then developed serious colitis that was never cured.  Had steroids, remicade, and entyvio.  None worked, ended up with a colectomy which saved my life.

        My point is that I only had one treament and in less than a year I am NED.  If you are getting colitis, chances are your immune system is attacking your tumor(s).

        Do not fret that you will not be continuing Immuno.

         

        Good luck!

        Rexpo
        Participant

          i went through this, had diarrhea about 15 times a day beginning ten days after first treatment of IPI/NIVO.  Spent a month at home on massive steroids, then 3 weeks in the hospital attempting to rest my colon.  Ended up with a colectomy. 

          What you are going through is really serious stuff, make sure you speak with your oncologist and encourage him/her to have you see a GI specialist and get a flex sigmoidoscopy.

          Surgery saved my life, hopefully it won't come to that with you!

          Rexpo
          Participant

            I deveolped colitis 10 days after my first treatment of yervoy/opdivo

            I tried remicade, it did not work.  On steroids for 2 months.  It did not work

              I spent 3 weeks in the hospital, then had a colectomy, removed almost my entire colon.  Other than having an ileostimy, my life has returned to normal after about 6 weeks post surgery.  I lost 38 lbs in the process and put all of that weight back on.

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