price9103

Thanks for those words of wisdom.  I think you are right about the quality of life.  He says he has had 88 yr of relatively good health and a good life, so he doesn't want to just have lots of treatments and lots of suffering, if he can't have a fair quality of life, he will do nothing and just try to enjoy life as long as we can.  The prospect of tolerating chemotherapy nausea and vomiting or ICU for resp. problems are just too much.  He is doing good now and we are able to go and do about anything we want to do now.  So thanks again for you advice and help.  Moffitt is to call and let us know about our appt to find out what they suggest as the best plan of care.  I will let you know when I find that out.  Thanks again, Marj

Thanks for those words of wisdom.  I think you are right about the quality of life.  He says he has had 88 yr of relatively good health and a good life, so he doesn't want to just have lots of treatments and lots of suffering, if he can't have a fair quality of life, he will do nothing and just try to enjoy life as long as we can.  The prospect of tolerating chemotherapy nausea and vomiting or ICU for resp. problems are just too much.  He is doing good now and we are able to go and do about anything we want to do now.  So thanks again for you advice and help.  Moffitt is to call and let us know about our appt to find out what they suggest as the best plan of care.  I will let you know when I find that out.  Thanks again, Marj

Thanks for those words of wisdom.  I think you are right about the quality of life.  He says he has had 88 yr of relatively good health and a good life, so he doesn't want to just have lots of treatments and lots of suffering, if he can't have a fair quality of life, he will do nothing and just try to enjoy life as long as we can.  The prospect of tolerating chemotherapy nausea and vomiting or ICU for resp. problems are just too much.  He is doing good now and we are able to go and do about anything we want to do now.  So thanks again for you advice and help.  Moffitt is to call and let us know about our appt to find out what they suggest as the best plan of care.  I will let you know when I find that out.  Thanks again, Marj

We are busy getting the heart studies done this week and Moffitt dr called today and states they are scheduling us to see the lung doctor as well as the melanoma doctor (Dr. Gonzales) and will let us know when.  They were suppose to present my husband's case to the "tumor board" today at Moffitt- this is the surgeon, pathologist, melanoma doctor, nurse, etc. the whole treatment team and that they would then prepare the plan of care and let us know what they det tcided would be the best plan of care.  We should then find out what the lung biopsy showed. 

I just wanted to talk with others who have faced this trial and see if you had any advice or suggestions as we fact this.  We are just in a state of shock now, I think.  We just never thought this thing would come back like this.  We have watched his skin closely for any sign of a new skin cancer (he has had several of those on his face and neck) or any mole.  He goes to the Dermatology Clinic q 6mo. and more often at the first sign of any new growth.   But this came out of the blind side, just a sudden enlargement of the neck lymph node with no obvious new skin growth. 

Thanks for listening.  We would appreciate any suggestions or advice.  Marj

We are busy getting the heart studies done this week and Moffitt dr called today and states they are scheduling us to see the lung doctor as well as the melanoma doctor (Dr. Gonzales) and will let us know when.  They were suppose to present my husband's case to the "tumor board" today at Moffitt- this is the surgeon, pathologist, melanoma doctor, nurse, etc. the whole treatment team and that they would then prepare the plan of care and let us know what they det tcided would be the best plan of care.  We should then find out what the lung biopsy showed. 

I just wanted to talk with others who have faced this trial and see if you had any advice or suggestions as we fact this.  We are just in a state of shock now, I think.  We just never thought this thing would come back like this.  We have watched his skin closely for any sign of a new skin cancer (he has had several of those on his face and neck) or any mole.  He goes to the Dermatology Clinic q 6mo. and more often at the first sign of any new growth.   But this came out of the blind side, just a sudden enlargement of the neck lymph node with no obvious new skin growth. 

Thanks for listening.  We would appreciate any suggestions or advice.  Marj

We are busy getting the heart studies done this week and Moffitt dr called today and states they are scheduling us to see the lung doctor as well as the melanoma doctor (Dr. Gonzales) and will let us know when.  They were suppose to present my husband's case to the "tumor board" today at Moffitt- this is the surgeon, pathologist, melanoma doctor, nurse, etc. the whole treatment team and that they would then prepare the plan of care and let us know what they det tcided would be the best plan of care.  We should then find out what the lung biopsy showed. 

I just wanted to talk with others who have faced this trial and see if you had any advice or suggestions as we fact this.  We are just in a state of shock now, I think.  We just never thought this thing would come back like this.  We have watched his skin closely for any sign of a new skin cancer (he has had several of those on his face and neck) or any mole.  He goes to the Dermatology Clinic q 6mo. and more often at the first sign of any new growth.   But this came out of the blind side, just a sudden enlargement of the neck lymph node with no obvious new skin growth. 

Thanks for listening.  We would appreciate any suggestions or advice.  Marj

The Melanoma doctor at moffitt is Dr. R. Gonzales in the Cutaneous Clinic.  They called today and said they were setting up appt for us with the Lung doctor and Dr. Gonzales and would call with appt date and time.  We still do not have the final results of the Stage?? I just said stage IV based on the recurrance, neck nodes positive and mass or spots on the lungs that they were doing the needle bx. to check for melanoma or another cancer??.  I am a retured Onc. RN but have been retired for 11 yr and there has been lots of new things since then.  I worked with some of the first trials of IL2 so I am quiet familiar with the side effects of that stuff and they were doing a few IPI trials so I know how tough that stuff is on people.  I have read about Temodar and it seems to have had lots of positive results.  I just found this site and wanted to check with people who have been on this side of treatments and see what advice you can give us.  We are overwhelmed with this sudden illness.  We have been enjoying our retirement and traveling, etc. and now we are just playing the waiting game.

Any advice or help would be d.preciated. Marj.

The Melanoma doctor at moffitt is Dr. R. Gonzales in the Cutaneous Clinic.  They called today and said they were setting up appt for us with the Lung doctor and Dr. Gonzales and would call with appt date and time.  We still do not have the final results of the Stage?? I just said stage IV based on the recurrance, neck nodes positive and mass or spots on the lungs that they were doing the needle bx. to check for melanoma or another cancer??.  I am a retured Onc. RN but have been retired for 11 yr and there has been lots of new things since then.  I worked with some of the first trials of IL2 so I am quiet familiar with the side effects of that stuff and they were doing a few IPI trials so I know how tough that stuff is on people.  I have read about Temodar and it seems to have had lots of positive results.  I just found this site and wanted to check with people who have been on this side of treatments and see what advice you can give us.  We are overwhelmed with this sudden illness.  We have been enjoying our retirement and traveling, etc. and now we are just playing the waiting game.

Any advice or help would be d.preciated. Marj.

The Melanoma doctor at moffitt is Dr. R. Gonzales in the Cutaneous Clinic.  They called today and said they were setting up appt for us with the Lung doctor and Dr. Gonzales and would call with appt date and time.  We still do not have the final results of the Stage?? I just said stage IV based on the recurrance, neck nodes positive and mass or spots on the lungs that they were doing the needle bx. to check for melanoma or another cancer??.  I am a retured Onc. RN but have been retired for 11 yr and there has been lots of new things since then.  I worked with some of the first trials of IL2 so I am quiet familiar with the side effects of that stuff and they were doing a few IPI trials so I know how tough that stuff is on people.  I have read about Temodar and it seems to have had lots of positive results.  I just found this site and wanted to check with people who have been on this side of treatments and see what advice you can give us.  We are overwhelmed with this sudden illness.  We have been enjoying our retirement and traveling, etc. and now we are just playing the waiting game.

Any advice or help would be d.preciated. Marj.