pfloyd

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      pfloyd
      Participant

        That is SOOOOOOOOO awesome!!!!!!! as you said I hope/pray that the results are permanent for you hubby AND for you as well – I KNOW how much of a stress this "issue" puts on both the patient and you (the significant other) … <heavy sigh/tear in the eye as well> … such good news!!! I hope for the same type of results in my case <deep breath> 

        … thank you so much for reporting here AND on my thread entry as well … hugs to both of you and your family – keep fighting the fight  …

         

         

        Michael

        pfloyd
        Participant

          That is SOOOOOOOOO awesome!!!!!!! as you said I hope/pray that the results are permanent for you hubby AND for you as well – I KNOW how much of a stress this "issue" puts on both the patient and you (the significant other) … <heavy sigh/tear in the eye as well> … such good news!!! I hope for the same type of results in my case <deep breath> 

          … thank you so much for reporting here AND on my thread entry as well … hugs to both of you and your family – keep fighting the fight  …

           

           

          Michael

          pfloyd
          Participant

            That is SOOOOOOOOO awesome!!!!!!! as you said I hope/pray that the results are permanent for you hubby AND for you as well – I KNOW how much of a stress this "issue" puts on both the patient and you (the significant other) … <heavy sigh/tear in the eye as well> … such good news!!! I hope for the same type of results in my case <deep breath> 

            … thank you so much for reporting here AND on my thread entry as well … hugs to both of you and your family – keep fighting the fight  …

             

             

            Michael

            pfloyd
            Participant

              The haphazardness is probably me more than the docs LOL … yes I am seeing Dr. Kari Kendra – Melanoma Oncologist at OSU Medical Center/The James Cancer Hospital in Columbus …

              10/2010 mole on my right calf biospied

              11/2010 port inserted in upper left chest

              11/2010 excission of the mole/area on right calf … sentinel node biospy (clear)

              12/2010 started immunotherapy – High dose Interferon treatment (20 treatments)

              1/2011 finished the Interferon treatments

              … good blood tests every 8 weeks thru to November 2011 …

              11/2011 CT scan – showed small tumor on my lower left lung and right perotid gland

              12/2011 needle biopsies of both lung/perotid gland (lung positive as melanoma/perotid gland negative)

              2/3/2012 VATS surgery – wedge resection of spot on lower left lung – all edges were clean …

              3/2012 Began self injections in the abdomen of Leukine (immunotherapy) 14 days of one shot per day/14 days off … made it thru 4 rounds (56 shots)

              5/2012  CT scan showed cancer on the left lung, between 7th/8th ribs/lower bowel area 2 separate areas of concern

              5/2012 PET scan indicated cancer in the pleura around the left lung/2 areas on the lower bowel/ 1 spot in the liver

              5/25/2012  Met with the oncology team to discuss options … Biological ( Interleukin 2 or IP) , Targeted therapy (Zelboraf being the oral chemo targeting the proteins that the cancer feeds off of) , Regular Chemotherapy … Reg Chemo acts to slow – ruled out … Z-boraf (quick acting) went with this as a Part I action to stop the growth of the tumors … will be doing Z-boraf for at least 4 1/2 months – evaluate the progress either continue or change to Biological stage … 

              6/4/12  began Z-boraf oral chemo … beginning week #3 Tuesday 6/19 … 

              6/28/12 scheduled to see Dr. Kendra at the James …

               

              … so really the treatment HAS been a logical progression – removal of the melanoma, immunotherapy 2 times to build up my immune system to fight the disease … when that did not work attacking the disease itself with targeted therapy(Zelboraf) …

              Thanks for the response!

              Michael

              pfloyd
              Participant

                The haphazardness is probably me more than the docs LOL … yes I am seeing Dr. Kari Kendra – Melanoma Oncologist at OSU Medical Center/The James Cancer Hospital in Columbus …

                10/2010 mole on my right calf biospied

                11/2010 port inserted in upper left chest

                11/2010 excission of the mole/area on right calf … sentinel node biospy (clear)

                12/2010 started immunotherapy – High dose Interferon treatment (20 treatments)

                1/2011 finished the Interferon treatments

                … good blood tests every 8 weeks thru to November 2011 …

                11/2011 CT scan – showed small tumor on my lower left lung and right perotid gland

                12/2011 needle biopsies of both lung/perotid gland (lung positive as melanoma/perotid gland negative)

                2/3/2012 VATS surgery – wedge resection of spot on lower left lung – all edges were clean …

                3/2012 Began self injections in the abdomen of Leukine (immunotherapy) 14 days of one shot per day/14 days off … made it thru 4 rounds (56 shots)

                5/2012  CT scan showed cancer on the left lung, between 7th/8th ribs/lower bowel area 2 separate areas of concern

                5/2012 PET scan indicated cancer in the pleura around the left lung/2 areas on the lower bowel/ 1 spot in the liver

                5/25/2012  Met with the oncology team to discuss options … Biological ( Interleukin 2 or IP) , Targeted therapy (Zelboraf being the oral chemo targeting the proteins that the cancer feeds off of) , Regular Chemotherapy … Reg Chemo acts to slow – ruled out … Z-boraf (quick acting) went with this as a Part I action to stop the growth of the tumors … will be doing Z-boraf for at least 4 1/2 months – evaluate the progress either continue or change to Biological stage … 

                6/4/12  began Z-boraf oral chemo … beginning week #3 Tuesday 6/19 … 

                6/28/12 scheduled to see Dr. Kendra at the James …

                 

                … so really the treatment HAS been a logical progression – removal of the melanoma, immunotherapy 2 times to build up my immune system to fight the disease … when that did not work attacking the disease itself with targeted therapy(Zelboraf) …

                Thanks for the response!

                Michael

                pfloyd
                Participant

                  The haphazardness is probably me more than the docs LOL … yes I am seeing Dr. Kari Kendra – Melanoma Oncologist at OSU Medical Center/The James Cancer Hospital in Columbus …

                  10/2010 mole on my right calf biospied

                  11/2010 port inserted in upper left chest

                  11/2010 excission of the mole/area on right calf … sentinel node biospy (clear)

                  12/2010 started immunotherapy – High dose Interferon treatment (20 treatments)

                  1/2011 finished the Interferon treatments

                  … good blood tests every 8 weeks thru to November 2011 …

                  11/2011 CT scan – showed small tumor on my lower left lung and right perotid gland

                  12/2011 needle biopsies of both lung/perotid gland (lung positive as melanoma/perotid gland negative)

                  2/3/2012 VATS surgery – wedge resection of spot on lower left lung – all edges were clean …

                  3/2012 Began self injections in the abdomen of Leukine (immunotherapy) 14 days of one shot per day/14 days off … made it thru 4 rounds (56 shots)

                  5/2012  CT scan showed cancer on the left lung, between 7th/8th ribs/lower bowel area 2 separate areas of concern

                  5/2012 PET scan indicated cancer in the pleura around the left lung/2 areas on the lower bowel/ 1 spot in the liver

                  5/25/2012  Met with the oncology team to discuss options … Biological ( Interleukin 2 or IP) , Targeted therapy (Zelboraf being the oral chemo targeting the proteins that the cancer feeds off of) , Regular Chemotherapy … Reg Chemo acts to slow – ruled out … Z-boraf (quick acting) went with this as a Part I action to stop the growth of the tumors … will be doing Z-boraf for at least 4 1/2 months – evaluate the progress either continue or change to Biological stage … 

                  6/4/12  began Z-boraf oral chemo … beginning week #3 Tuesday 6/19 … 

                  6/28/12 scheduled to see Dr. Kendra at the James …

                   

                  … so really the treatment HAS been a logical progression – removal of the melanoma, immunotherapy 2 times to build up my immune system to fight the disease … when that did not work attacking the disease itself with targeted therapy(Zelboraf) …

                  Thanks for the response!

                  Michael

                  pfloyd
                  Participant

                    Erin, thank you much for the reply … the joint pain is soooooo unpredictable it seems – had horrific pain in my right wrist for the last week then all of the sudden when I woke up this morning the pain in my wrist was totally gone – BUT not to be out done it seems to have moved into my elbows and knees – go figure … I discribed the pain to one of the oncologist PA's from OSU Medical Center/The James Cancer hospital as being as if someone had taken a brush full of "pain" stroked the muscles in my body – instant pain in the muscles BUT then stopped at each of my joints and let the brush drain itself of "pain" into each joint – ankles/knees/elbows/wrists LOL … I see my oncologist June 28th – no scans scheduled on that date only a blood draw …

                    … thanks again – I will do my best to keep posting … although not the best of circumstances – I feel good about being able to share with others "fighting" the same battle … YOU take care of you Erin!

                     

                    Thoughts and prayers back atcha …

                     

                    Michael

                    pfloyd
                    Participant

                      Erin, thank you much for the reply … the joint pain is soooooo unpredictable it seems – had horrific pain in my right wrist for the last week then all of the sudden when I woke up this morning the pain in my wrist was totally gone – BUT not to be out done it seems to have moved into my elbows and knees – go figure … I discribed the pain to one of the oncologist PA's from OSU Medical Center/The James Cancer hospital as being as if someone had taken a brush full of "pain" stroked the muscles in my body – instant pain in the muscles BUT then stopped at each of my joints and let the brush drain itself of "pain" into each joint – ankles/knees/elbows/wrists LOL … I see my oncologist June 28th – no scans scheduled on that date only a blood draw …

                      … thanks again – I will do my best to keep posting … although not the best of circumstances – I feel good about being able to share with others "fighting" the same battle … YOU take care of you Erin!

                       

                      Thoughts and prayers back atcha …

                       

                      Michael

                      pfloyd
                      Participant

                        Erin, thank you much for the reply … the joint pain is soooooo unpredictable it seems – had horrific pain in my right wrist for the last week then all of the sudden when I woke up this morning the pain in my wrist was totally gone – BUT not to be out done it seems to have moved into my elbows and knees – go figure … I discribed the pain to one of the oncologist PA's from OSU Medical Center/The James Cancer hospital as being as if someone had taken a brush full of "pain" stroked the muscles in my body – instant pain in the muscles BUT then stopped at each of my joints and let the brush drain itself of "pain" into each joint – ankles/knees/elbows/wrists LOL … I see my oncologist June 28th – no scans scheduled on that date only a blood draw …

                        … thanks again – I will do my best to keep posting … although not the best of circumstances – I feel good about being able to share with others "fighting" the same battle … YOU take care of you Erin!

                         

                        Thoughts and prayers back atcha …

                         

                        Michael

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