nsabel

Thanks for all the input– I just updated my dad's profile. I regret how long its taken me to respond to your very helpful comments– everything has just  been so hectic since my dad's recurrence.

  Right now he is stage IV with the mets concentrated in his neck (both sides and therefore inoperable). This is his first recurrance since initial diagnosis and surgery to remove in 2009. Given his complications we still trying to find the right treatment center for him. 

OSU recommended starting with Temodar and Abraxane in hopes that the Zelboraf +MEK inhibitors combo would be available to him in the future 

Moffitt suggested going straight to Zelboraf  (without the MEK inhibitors). This seems like a bit of a calculated risk given that Zelboraf only works for a limited amount of time and the MEK inhibitors are less likely to add much once you're already on Zelboraf.  what his options are after Zelboraf stops working is completely unclear 

both confirmed he is very unlikely to be let into a clinical trial and that immunotherapies were completely out. 

Next step is Sloan Kettering.  Is there anything i should be thinking about or asking about? option just seem so limited. 

thanks again, 
Naomi

Thanks for all the input– I just updated my dad's profile. I regret how long its taken me to respond to your very helpful comments– everything has just  been so hectic since my dad's recurrence.

  Right now he is stage IV with the mets concentrated in his neck (both sides and therefore inoperable). This is his first recurrance since initial diagnosis and surgery to remove in 2009. Given his complications we still trying to find the right treatment center for him. 

OSU recommended starting with Temodar and Abraxane in hopes that the Zelboraf +MEK inhibitors combo would be available to him in the future 

Moffitt suggested going straight to Zelboraf  (without the MEK inhibitors). This seems like a bit of a calculated risk given that Zelboraf only works for a limited amount of time and the MEK inhibitors are less likely to add much once you're already on Zelboraf.  what his options are after Zelboraf stops working is completely unclear 

both confirmed he is very unlikely to be let into a clinical trial and that immunotherapies were completely out. 

Next step is Sloan Kettering.  Is there anything i should be thinking about or asking about? option just seem so limited. 

thanks again, 
Naomi

Thanks for all the input– I just updated my dad's profile. I regret how long its taken me to respond to your very helpful comments– everything has just  been so hectic since my dad's recurrence.

  Right now he is stage IV with the mets concentrated in his neck (both sides and therefore inoperable). This is his first recurrance since initial diagnosis and surgery to remove in 2009. Given his complications we still trying to find the right treatment center for him. 

OSU recommended starting with Temodar and Abraxane in hopes that the Zelboraf +MEK inhibitors combo would be available to him in the future 

Moffitt suggested going straight to Zelboraf  (without the MEK inhibitors). This seems like a bit of a calculated risk given that Zelboraf only works for a limited amount of time and the MEK inhibitors are less likely to add much once you're already on Zelboraf.  what his options are after Zelboraf stops working is completely unclear 

both confirmed he is very unlikely to be let into a clinical trial and that immunotherapies were completely out. 

Next step is Sloan Kettering.  Is there anything i should be thinking about or asking about? option just seem so limited. 

thanks again, 
Naomi

POW– thanks I appreciate the advice. is there anywhere other than clinicaltrials.gov that i should be looking? 

hope you're having a happy holiday,

Naomi

POW– thanks I appreciate the advice. is there anywhere other than clinicaltrials.gov that i should be looking? 

hope you're having a happy holiday,

Naomi

POW– thanks I appreciate the advice. is there anywhere other than clinicaltrials.gov that i should be looking? 

hope you're having a happy holiday,

Naomi

Lear– thanks so much for the comment.  if you dont mind me asking, given your immune system issues- what types of treatment have been available to you? Are you able to take any of the immunotherapy drugs? 

thanks again, 

Naomi

Lear– thanks so much for the comment.  if you dont mind me asking, given your immune system issues- what types of treatment have been available to you? Are you able to take any of the immunotherapy drugs? 

thanks again, 

Naomi

Lear– thanks so much for the comment.  if you dont mind me asking, given your immune system issues- what types of treatment have been available to you? Are you able to take any of the immunotherapy drugs? 

thanks again, 

Naomi

Swanee– I will definitely check out the book. 

thanks,

Naomi

Swanee– I will definitely check out the book. 

thanks,

Naomi

Swanee– I will definitely check out the book. 

thanks,

Naomi

Kyle– thanks so much

Kyle– thanks so much

Kyle– thanks so much