Nashvillian

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      Nashvillian
      Participant
        I am on nivo and it’s not a trial. It is my adjunctive therapy for 1 year. Then see where we are at. I am stage 3b.
        Nashvillian
        Participant
          Not sure about Medicare but Aetna approved me for stage 3b 6 weeks ago.
          Nashvillian
          Participant

            I am stage 3b on opdivo only as adjuntive therpay. Completely ressescted. The treatment with just opdivo is not bad. 

            Nashvillian
            Participant

              Dx in July this year. Had surgery Stage 3b and now on Opdivo in Adjunctive Therapy. The owrst part has been the sirgery to remove 30 lymph nodes in my neck and it has not healed well. Other than that it has not been terrible.

              Nashvillian
              Participant

                What an Awesome story!!!

                 

                Nashvillian
                Participant
                  Terry,

                  I had a 3.6mm melanoma cut of about 3 months ago, and parotid removed, and. Lymph nodes. My face was almost like a stroke victim. As of today it’s almost back to normal. They get in there moving stuff around and causes havoc.

                  Nashvillian
                  Participant

                    I wish I would have taken the time to investigate more on this. When I was first diagnosed 3 months ago I just said do whatever get it out of me. No I am still healing from surgery 2 months ago. Had a huge infection and none of the nodes came back bad except the sentitnel one that we saw on pet scan anyways.

                     

                    Nashvillian
                    Participant

                      Be impossible to answer unless someone has their own personal experience. I have read anywhere from weeks to never.

                       

                      Nashvillian
                      Participant

                        Went to the 30 minutes and it was not a problem for me. They were about to up me to the double dose so i only had togo once a month, but opdivo was found to not be working for me and i have togo back under the knoife and a new treatment after that.

                        Nashvillian
                        Participant
                          Me neither . I went super agressive and have second guessed it because of a massive infection I got and still dealing with.
                          Nashvillian
                          Participant

                            No cold huh thats wild. I have only been ftigued and thats about it. I am about the same  started treatment 50 days after surgery.

                            Nashvillian
                            Participant

                              Yes insurance is covering it. I am one of the first ones to get it approved for this treatment i think outside of a trail. I go in Monday for my next treatment. Really outside the surgery, which was no joke, I have very little side effects except some fatigue.

                              Nashvillian
                              Participant

                                Are you still in Nashville?

                                Nashvillian
                                Participant

                                  I am 42 and just went through all this. I am repsonding because these posts are from years ago. I just had my paroid removed and 34 lymph nodes and it was not easy. I am a decenlty in shap guy need to lose 25 libs but strong. You do not have todo chemo now for this. Ask you dr about the immunotherpaies available they are nto as harsh.

                                   

                                  Nashvillian
                                  Participant

                                    Thats what i did . I just got mine finsihed and mine is on my left temple. I had to have wide margins because of the level of my disease but the plastic surgeon is the corrrect jumping off point.

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