Napa K

Seconding the suggestion of Angeles Clinic.  Not sure how they handle Medi-Cal but they are a heavily trial based program so that might be a good option.  I have appreciated Dr. Hamid's approach and optimism in discussing many options for tackling treatment.

Seconding the suggestion of Angeles Clinic.  Not sure how they handle Medi-Cal but they are a heavily trial based program so that might be a good option.  I have appreciated Dr. Hamid's approach and optimism in discussing many options for tackling treatment.

Seconding the suggestion of Angeles Clinic.  Not sure how they handle Medi-Cal but they are a heavily trial based program so that might be a good option.  I have appreciated Dr. Hamid's approach and optimism in discussing many options for tackling treatment.

Hi Diane-

Regarding anti-PD1, have you tried contacting Angeles Clinic, Los Angeles (Dr. Hamid) or California Pacific Medical Clinic in San Francisco (Dr. Minor)? I have heard of multiple people getting on trial recently at these sites.

Hi Diane-

Regarding anti-PD1, have you tried contacting Angeles Clinic, Los Angeles (Dr. Hamid) or California Pacific Medical Clinic in San Francisco (Dr. Minor)? I have heard of multiple people getting on trial recently at these sites.

Hi Diane-

Regarding anti-PD1, have you tried contacting Angeles Clinic, Los Angeles (Dr. Hamid) or California Pacific Medical Clinic in San Francisco (Dr. Minor)? I have heard of multiple people getting on trial recently at these sites.

Yes, I am on anti PD1 trial now, post Ipi. It is the Merck 3475 trial and I know there are opening. I just spoke with the physician in person this last week to clarify what he had open on a trial front and the answer was multiple anti-PD1 spots for those that have had Ipi.  Please contact me directly if you wish and I will fill you in.  555walk@comcast.net

Wishing you the best-

Kari

Yes, I am on anti PD1 trial now, post Ipi. It is the Merck 3475 trial and I know there are opening. I just spoke with the physician in person this last week to clarify what he had open on a trial front and the answer was multiple anti-PD1 spots for those that have had Ipi.  Please contact me directly if you wish and I will fill you in.  555walk@comcast.net

Wishing you the best-

Kari

Yes, I am on anti PD1 trial now, post Ipi. It is the Merck 3475 trial and I know there are opening. I just spoke with the physician in person this last week to clarify what he had open on a trial front and the answer was multiple anti-PD1 spots for those that have had Ipi.  Please contact me directly if you wish and I will fill you in.  555walk@comcast.net

Wishing you the best-

Kari

Hi  Kevin-

I didn't read other replies so others may have shared more useful info but here is my two cents.  I am cruising on 10 years at Stage IV with 5+ of them with active disease (had a few year little NED vacation in there).  I think with the exception of vaccines and NIH TIL protocol, I have had them all and been treated/visited just as many institutions.  I am currently on PD1 trial in California at the Angeles Clinic and have had a great experience.  That said, I would throw that name into your research line up.  They have one site that is almost entirely trial patients so access seems to be quite high to a variety of options and patient care is great.  

UCLA and Penn would be the other places I would consider especially as you make your decision on what to do next.  Dr. Lynne Schucter at Penn is amazing and is a very critical and creative thinker as is Toni Ribas at UCLA.  You may not end up in treatment with them based on what trials they have open but having a well versed opinion on what your options are can be invaluable.  Then you need to find access to what you need and that is where Angeles Clinic might fit in.  I am learning the further I go in this that it takes multiple minds to get the right treatment in place.

Happy to share more with you off line, just let me know.

Be well!

Napa K

Hi  Kevin-

I didn't read other replies so others may have shared more useful info but here is my two cents.  I am cruising on 10 years at Stage IV with 5+ of them with active disease (had a few year little NED vacation in there).  I think with the exception of vaccines and NIH TIL protocol, I have had them all and been treated/visited just as many institutions.  I am currently on PD1 trial in California at the Angeles Clinic and have had a great experience.  That said, I would throw that name into your research line up.  They have one site that is almost entirely trial patients so access seems to be quite high to a variety of options and patient care is great.  

UCLA and Penn would be the other places I would consider especially as you make your decision on what to do next.  Dr. Lynne Schucter at Penn is amazing and is a very critical and creative thinker as is Toni Ribas at UCLA.  You may not end up in treatment with them based on what trials they have open but having a well versed opinion on what your options are can be invaluable.  Then you need to find access to what you need and that is where Angeles Clinic might fit in.  I am learning the further I go in this that it takes multiple minds to get the right treatment in place.

Happy to share more with you off line, just let me know.

Be well!

Napa K

Hi  Kevin-

I didn't read other replies so others may have shared more useful info but here is my two cents.  I am cruising on 10 years at Stage IV with 5+ of them with active disease (had a few year little NED vacation in there).  I think with the exception of vaccines and NIH TIL protocol, I have had them all and been treated/visited just as many institutions.  I am currently on PD1 trial in California at the Angeles Clinic and have had a great experience.  That said, I would throw that name into your research line up.  They have one site that is almost entirely trial patients so access seems to be quite high to a variety of options and patient care is great.  

UCLA and Penn would be the other places I would consider especially as you make your decision on what to do next.  Dr. Lynne Schucter at Penn is amazing and is a very critical and creative thinker as is Toni Ribas at UCLA.  You may not end up in treatment with them based on what trials they have open but having a well versed opinion on what your options are can be invaluable.  Then you need to find access to what you need and that is where Angeles Clinic might fit in.  I am learning the further I go in this that it takes multiple minds to get the right treatment in place.

Happy to share more with you off line, just let me know.

Be well!

Napa K

Hi Sharon-

I don't know where you are in terms of travel but try calling Angeles Clinic in Santa Monica to see the status of their anti-PD1 trials.  I am currently on trial there and have had a great experience.  If you would like to contact me directly off the board, please do so.  555walk@comcast.net.  Best of luck in this scary time.

Hi Sharon-

I don't know where you are in terms of travel but try calling Angeles Clinic in Santa Monica to see the status of their anti-PD1 trials.  I am currently on trial there and have had a great experience.  If you would like to contact me directly off the board, please do so.  555walk@comcast.net.  Best of luck in this scary time.

Hi Sharon-

I don't know where you are in terms of travel but try calling Angeles Clinic in Santa Monica to see the status of their anti-PD1 trials.  I am currently on trial there and have had a great experience.  If you would like to contact me directly off the board, please do so.  555walk@comcast.net.  Best of luck in this scary time.