Morris

Hello all

Just registered so this is my first posting.  

I am also a current member of the roids (Prednisone) club.  Thankfully I just finished my 4th Ippy/Novo infusion May 4, 2016 but on hold to continue with Novolumab alone every 2 weeks.  I feel very fortunate to have pretty much breezed through all four infusions.  Well, up until right after the 4th IV.  After the 2nd I developed a rash on chest and back, never really itched bad, some minor fatigue from time to time.

Few days after the 4th infusion the dreaded diarrah started.  Noticed my fever increasing to 99-101 for a couple of days along with abdominal cramping.  Contacted doctor Monday, May 16, 2016 and was advised to go to ER.  Figured I would be in and out with some meds, not the case, admitted until the following Friday.  

Started me on heavy IV antibiotics, Prednisone, and Dilaudid for pain, liquid diet for first few days. Did a CT of abdomen showing severe inflmation of small intestine.  Finally started feeling better and they lifted liquid diet.  I ate like a horse.  The food at MDA Houston is actually really good.

Home now and feeling better.  They still have me on Prednison slowly decreasing every 3 days.  Started at 80MG, now at 50MG all the way down to 10MG.  I will be glad to be off of it.  Heart palpatations/arthmia has been driving me nuts, I eat all the time, don't sleep well, way too wired at times and fatigue other times.

Some good news!  I was scheduled to go in that following week for re-staging CT scans to see if the Ippy/Novo was working.  My doctor said since I was in hospital and they did a CT of abdomen they would go ahead and scan my chest.  The chest CT showed good results, the spots on right lobe were almost gone, the 1.7CM in left was down to .7mm.

Hopefully I will be off the Perdnisone soon and start the 2 week Novolumab treatments. 

Hello all

Just registered so this is my first posting.  

I am also a current member of the roids (Prednisone) club.  Thankfully I just finished my 4th Ippy/Novo infusion May 4, 2016 but on hold to continue with Novolumab alone every 2 weeks.  I feel very fortunate to have pretty much breezed through all four infusions.  Well, up until right after the 4th IV.  After the 2nd I developed a rash on chest and back, never really itched bad, some minor fatigue from time to time.

Few days after the 4th infusion the dreaded diarrah started.  Noticed my fever increasing to 99-101 for a couple of days along with abdominal cramping.  Contacted doctor Monday, May 16, 2016 and was advised to go to ER.  Figured I would be in and out with some meds, not the case, admitted until the following Friday.  

Started me on heavy IV antibiotics, Prednisone, and Dilaudid for pain, liquid diet for first few days. Did a CT of abdomen showing severe inflmation of small intestine.  Finally started feeling better and they lifted liquid diet.  I ate like a horse.  The food at MDA Houston is actually really good.

Home now and feeling better.  They still have me on Prednison slowly decreasing every 3 days.  Started at 80MG, now at 50MG all the way down to 10MG.  I will be glad to be off of it.  Heart palpatations/arthmia has been driving me nuts, I eat all the time, don't sleep well, way too wired at times and fatigue other times.

Some good news!  I was scheduled to go in that following week for re-staging CT scans to see if the Ippy/Novo was working.  My doctor said since I was in hospital and they did a CT of abdomen they would go ahead and scan my chest.  The chest CT showed good results, the spots on right lobe were almost gone, the 1.7CM in left was down to .7mm.

Hopefully I will be off the Perdnisone soon and start the 2 week Novolumab treatments. 

Hello all

Just registered so this is my first posting.  

I am also a current member of the roids (Prednisone) club.  Thankfully I just finished my 4th Ippy/Novo infusion May 4, 2016 but on hold to continue with Novolumab alone every 2 weeks.  I feel very fortunate to have pretty much breezed through all four infusions.  Well, up until right after the 4th IV.  After the 2nd I developed a rash on chest and back, never really itched bad, some minor fatigue from time to time.

Few days after the 4th infusion the dreaded diarrah started.  Noticed my fever increasing to 99-101 for a couple of days along with abdominal cramping.  Contacted doctor Monday, May 16, 2016 and was advised to go to ER.  Figured I would be in and out with some meds, not the case, admitted until the following Friday.  

Started me on heavy IV antibiotics, Prednisone, and Dilaudid for pain, liquid diet for first few days. Did a CT of abdomen showing severe inflmation of small intestine.  Finally started feeling better and they lifted liquid diet.  I ate like a horse.  The food at MDA Houston is actually really good.

Home now and feeling better.  They still have me on Prednison slowly decreasing every 3 days.  Started at 80MG, now at 50MG all the way down to 10MG.  I will be glad to be off of it.  Heart palpatations/arthmia has been driving me nuts, I eat all the time, don't sleep well, way too wired at times and fatigue other times.

Some good news!  I was scheduled to go in that following week for re-staging CT scans to see if the Ippy/Novo was working.  My doctor said since I was in hospital and they did a CT of abdomen they would go ahead and scan my chest.  The chest CT showed good results, the spots on right lobe were almost gone, the 1.7CM in left was down to .7mm.

Hopefully I will be off the Perdnisone soon and start the 2 week Novolumab treatments.