Thank you all for responding I will check into MD Anderson. Yes, from what I have been able to find about LM it is aggressive and the prognosis isn't very good, 10 weeks I read in one place. that's why I was wondering if anyone had it and had Keytruda. The one thing I read they do for LM is a reservoir in the skull that delivers treatment right to the spinal fluid. So far has had WBR and spinal radiation to try to slow it down. Maybe give Keytruda a chance to work.
best wishes to you all! Thank you again.
