Mikalias

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      Mikalias
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        Yes I have two masses on my liver that have come back to life but the keytrudia is working and they are about half the size after 3 treatments.  I had 11 tumors on my liver some of them are completely gone, I think they refer that as photopenic.  I normally get a combined pet/ct scan every quarter but I had a colonoscopy and they found a 3cm polyp with cancer in it and took it out, so they did a cat scan and the report show the 3 masses on my liver shinking but they could not give Glucose uptake becuase the cat scan doesn measure it.  I'll have another pet/ct in next 3 month then i'll be able to see the how active they are.  They replaced the Pet/CT scan machine the last two times I had scans and it is a new machine that does a complete body scan as it is much longer and the technician says it is 5 times more sensitive then the old one.  I see more information on the reports then before.

         

        Mik

        Mikalias
        Participant

          Thank you for the correction regarding the primary tumor as I always thought it was the one on my neck right below the right earlobe where the primary was.  Even through it isn't going away I have noticed that it is turning dark grey and then later changed to a redish color.  I was sent to a plastic surgeon to remove the primary on my earlobe, later I come to think that they should have sent me to an ENT to do the surgery as ive always been a little suppiciios of the fact that it metastazised directly below where he made the incision to remove my lymph nodes.  If blood from the earlobe spilled down into the in incision and onto the exposed Parotid gland could that cause the stage IV tumor to grow there?  Also I have a great oncologist as he is chief of staff of all the oncologist that work there.

           

          Mik

           

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