MB

*correction: she had her first infusion 2 weeks ago (feels like forever ago) and is due for the second cycle next week. Also, there are new tumors that have popped up (swollen nodules) since starting ipi/nivo. I was thinking maybe they were already there but can now be felt/seen due to the swelling. Thanks!

Thank you, Celeste! Wow, very concerning that our local oncologist did not know this. Scary, honestly. Thank God for melanoma specialists!-MB

Thanks, Judi, I’m working on getting a consultation with a melanoma specialist. I’m glad to hear you are NED!

Thank you, Ash! I’m so glad to hear your partner is doing so well- it’s very comforting to know that there is hope with ipo/Nivo. I am eager for her to get started on it. Interestingly, she also had a large tumor removed from her cerebellum in May, which was successful. It’s been a roller coaster for sure! Ups and downs. Right now I am just praying she stays stable until the treatment begins. Watching her like a hawk, monitoring everything. This forum and website has been so helpful and I am grateful for the support.

Thank you so much, Celeste. I really appreciate your help and support. She isn’t scheduled to start immunotherapy until next Friday (9/29).. I hope that’s not too long of a wait. I think that was the soonest they could get her in. I will keep you updated.
Thanks,
-MB