MaureenB

Hi,

My husband is on the ipi/nivo trial with very advanced mucosal melanoma – very large mass in his abdomen and some in his liver. He has had the final dual drug and is more exhausted than ever. he's 73 and is barely able to get around and is lying or sitting down most of the time and feeling very miserable. He's having stonach issues too which are temporariy relived by Gaviscon. No vomiitng or diarrhoea. Any similar experiences on these drugs or is it the disease – treatemt team say both.

Thanks,

Maureen

Hi,

My husband is on the ipi/nivo trial with very advanced mucosal melanoma – very large mass in his abdomen and some in his liver. He has had the final dual drug and is more exhausted than ever. he's 73 and is barely able to get around and is lying or sitting down most of the time and feeling very miserable. He's having stonach issues too which are temporariy relived by Gaviscon. No vomiitng or diarrhoea. Any similar experiences on these drugs or is it the disease – treatemt team say both.

Thanks,

Maureen

Hi,

My husband is on the ipi/nivo trial with very advanced mucosal melanoma – very large mass in his abdomen and some in his liver. He has had the final dual drug and is more exhausted than ever. he's 73 and is barely able to get around and is lying or sitting down most of the time and feeling very miserable. He's having stonach issues too which are temporariy relived by Gaviscon. No vomiitng or diarrhoea. Any similar experiences on these drugs or is it the disease – treatemt team say both.

Thanks,

Maureen

Wondering if anyone is particpating in CheckMate 401? My husband has stage 4 mucosal melanoma with large mass in his abdomen and several in liver. He is experiencing 'pseudoprogression' maybe or maybe it's just not working although it seemed to at first with the disappearance of a smaller tumour on his back?? Main side effect is extreme fatigue and weakness which is getting worse. He is 73 years old and had mucosal melanoma in is right maxillary sinus 7 years ago which hwas removed and he hasn't has a recurrnce since until this was discovered in late May this year. We don't know how long it had been there of course. Any similar experiences? he's so exhautsed he needs to sit or lie down much of the time.

Wondering if anyone is particpating in CheckMate 401? My husband has stage 4 mucosal melanoma with large mass in his abdomen and several in liver. He is experiencing 'pseudoprogression' maybe or maybe it's just not working although it seemed to at first with the disappearance of a smaller tumour on his back?? Main side effect is extreme fatigue and weakness which is getting worse. He is 73 years old and had mucosal melanoma in is right maxillary sinus 7 years ago which hwas removed and he hasn't has a recurrnce since until this was discovered in late May this year. We don't know how long it had been there of course. Any similar experiences? he's so exhautsed he needs to sit or lie down much of the time.

Wondering if anyone is particpating in CheckMate 401? My husband has stage 4 mucosal melanoma with large mass in his abdomen and several in liver. He is experiencing 'pseudoprogression' maybe or maybe it's just not working although it seemed to at first with the disappearance of a smaller tumour on his back?? Main side effect is extreme fatigue and weakness which is getting worse. He is 73 years old and had mucosal melanoma in is right maxillary sinus 7 years ago which hwas removed and he hasn't has a recurrnce since until this was discovered in late May this year. We don't know how long it had been there of course. Any similar experiences? he's so exhautsed he needs to sit or lie down much of the time.