HI
i struggle as well with the fact how extremely rare and deadly mucosal melanoma is. People with melanoma are describing their battle of 10 or more with disease it makes me angry as anyone with mucosal would only dream about being alive for 10 years after diagnosis….I was diagnosed a year ago, at the age of 36 with, with mucosal melanoma of vagina ( fornix), since then I had surgery, ipimunalab and now stage 4 on pd1 inhibitor – pembrolizumab . I started writing blog about it all : https://marialudmila.wordpress.com/
I would like to get in touch with other members from this topic, doctors told me its one in 25000000 and even then it would happen afte age r 53 so it feels extra lonely for me
