maria d

Hi,

My name is Maria, and I was diagnosed in November with Rectal Melanoma (Mucosal). My first Surgeon wanted to remove the rectum, and perform a colostomy. I was so upset, and frightened. My friend and I researched and found Dr Bamboat at Hackensack University Medical Center. He was able to save the rectum and get good margins.  During a recent pevic MRI, a new growth has been detected, and I am scheduled for a biopsy. I don't know what that will bring. At least they may start tretment, now. I have had so many problems with my Insurance company, due to it being an EPO, they will not allow out of state coverage. It took them 51 days to decline allowing me to go to MSKCC, in NYC for a second opinion. They are treating this as Cutaneous, even though we keep telling them its Mucosal.  Anybody else encountering these issues? 

Thanks 

Maria D

Hi,

My name is Maria, and I was diagnosed in November with Rectal Melanoma (Mucosal). My first Surgeon wanted to remove the rectum, and perform a colostomy. I was so upset, and frightened. My friend and I researched and found Dr Bamboat at Hackensack University Medical Center. He was able to save the rectum and get good margins.  During a recent pevic MRI, a new growth has been detected, and I am scheduled for a biopsy. I don't know what that will bring. At least they may start tretment, now. I have had so many problems with my Insurance company, due to it being an EPO, they will not allow out of state coverage. It took them 51 days to decline allowing me to go to MSKCC, in NYC for a second opinion. They are treating this as Cutaneous, even though we keep telling them its Mucosal.  Anybody else encountering these issues? 

Thanks 

Maria D

Hi,

My name is Maria, and I was diagnosed in November with Rectal Melanoma (Mucosal). My first Surgeon wanted to remove the rectum, and perform a colostomy. I was so upset, and frightened. My friend and I researched and found Dr Bamboat at Hackensack University Medical Center. He was able to save the rectum and get good margins.  During a recent pevic MRI, a new growth has been detected, and I am scheduled for a biopsy. I don't know what that will bring. At least they may start tretment, now. I have had so many problems with my Insurance company, due to it being an EPO, they will not allow out of state coverage. It took them 51 days to decline allowing me to go to MSKCC, in NYC for a second opinion. They are treating this as Cutaneous, even though we keep telling them its Mucosal.  Anybody else encountering these issues? 

Thanks 

Maria D

Hi

I am new to the site, so I'm unsure of how this works.  But, I have MUCOSAL RECTAL MELANOMA.

My Tumor was removed in January, with good margins. No Radiation or Chemo, yet. 

The Onc., tried to enroll me in a Clinical Trial, but i was rejected. They haven't proven Metastatic, yet.

so far, all I've been doing is watch and wait.  Now, I have a growth on my ovary and sacrum area. Its only

March… 3 months later.  Now they want to verify if its a secondary site.  Also, cKIT and BRAF Negative.

What can I expect? Anybody else with this?

Thanks

Maria D

Hi

I am new to the site, so I'm unsure of how this works.  But, I have MUCOSAL RECTAL MELANOMA.

My Tumor was removed in January, with good margins. No Radiation or Chemo, yet. 

The Onc., tried to enroll me in a Clinical Trial, but i was rejected. They haven't proven Metastatic, yet.

so far, all I've been doing is watch and wait.  Now, I have a growth on my ovary and sacrum area. Its only

March… 3 months later.  Now they want to verify if its a secondary site.  Also, cKIT and BRAF Negative.

What can I expect? Anybody else with this?

Thanks

Maria D

Hi

I am new to the site, so I'm unsure of how this works.  But, I have MUCOSAL RECTAL MELANOMA.

My Tumor was removed in January, with good margins. No Radiation or Chemo, yet. 

The Onc., tried to enroll me in a Clinical Trial, but i was rejected. They haven't proven Metastatic, yet.

so far, all I've been doing is watch and wait.  Now, I have a growth on my ovary and sacrum area. Its only

March… 3 months later.  Now they want to verify if its a secondary site.  Also, cKIT and BRAF Negative.

What can I expect? Anybody else with this?

Thanks

Maria D

Hi Jerry

I am new to the site, so excuse me if I don't follow Protocol, as I on't know all the rules.

I have Mucosal Rectal Melanoma.  The Tumor was resected January 2, and I am BRAF and CKIT Mutation free.

The Oncologists tried to enroll me in a clinical trial, but I was declined – NOT METASTATIC, yet.

So, they are jut monitoring me, for now.  What can you tell me abou this dreadful disease?

Thanks

Maria D

Hi Jerry

I am new to the site, so excuse me if I don't follow Protocol, as I on't know all the rules.

I have Mucosal Rectal Melanoma.  The Tumor was resected January 2, and I am BRAF and CKIT Mutation free.

The Oncologists tried to enroll me in a clinical trial, but I was declined – NOT METASTATIC, yet.

So, they are jut monitoring me, for now.  What can you tell me abou this dreadful disease?

Thanks

Maria D

Hi Jerry

I am new to the site, so excuse me if I don't follow Protocol, as I on't know all the rules.

I have Mucosal Rectal Melanoma.  The Tumor was resected January 2, and I am BRAF and CKIT Mutation free.

The Oncologists tried to enroll me in a clinical trial, but I was declined – NOT METASTATIC, yet.

So, they are jut monitoring me, for now.  What can you tell me abou this dreadful disease?

Thanks

Maria D