jangle

Maureen, 

Thanks so much for your response and suggestions.  I will check with the parents and look into these centers. 

I keep hoping that there is a melanoma specialist out there with particular focus on pediatric patients having central nervous system mets – I suppose that's a very narrow field.

In reading other posts on the site I am getting the sense that it is common to pay out of pocket for initial consultations (as a second opinion to review pathology determinations, treatment plans, etc), and work on Kaiser for the referral and pre-authorization for any care to be provided out-of-network.  Does that sound right?

Thanks again for your support.

joe

Maureen, 

Thanks so much for your response and suggestions.  I will check with the parents and look into these centers. 

I keep hoping that there is a melanoma specialist out there with particular focus on pediatric patients having central nervous system mets – I suppose that's a very narrow field.

In reading other posts on the site I am getting the sense that it is common to pay out of pocket for initial consultations (as a second opinion to review pathology determinations, treatment plans, etc), and work on Kaiser for the referral and pre-authorization for any care to be provided out-of-network.  Does that sound right?

Thanks again for your support.

joe

Maureen, 

Thanks so much for your response and suggestions.  I will check with the parents and look into these centers. 

I keep hoping that there is a melanoma specialist out there with particular focus on pediatric patients having central nervous system mets – I suppose that's a very narrow field.

In reading other posts on the site I am getting the sense that it is common to pay out of pocket for initial consultations (as a second opinion to review pathology determinations, treatment plans, etc), and work on Kaiser for the referral and pre-authorization for any care to be provided out-of-network.  Does that sound right?

Thanks again for your support.

joe