@jan-in-oc
Forum Replies Created
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- November 6, 2011 at 11:55 pm
Nick, I'm not sure what to say. I read about your journey throughout this and try to pull strength from it, but at the same time my heart breaks for your family and I am afraid we are not far behind in running out of options. This is so hard and I admire how you both have managed to deal with this. My prayers are with you.
Take care.
Jan, wife to Dirk
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- November 6, 2011 at 11:55 pm
Nick, I'm not sure what to say. I read about your journey throughout this and try to pull strength from it, but at the same time my heart breaks for your family and I am afraid we are not far behind in running out of options. This is so hard and I admire how you both have managed to deal with this. My prayers are with you.
Take care.
Jan, wife to Dirk
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- November 6, 2011 at 11:55 pm
Nick, I'm not sure what to say. I read about your journey throughout this and try to pull strength from it, but at the same time my heart breaks for your family and I am afraid we are not far behind in running out of options. This is so hard and I admire how you both have managed to deal with this. My prayers are with you.
Take care.
Jan, wife to Dirk
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- November 1, 2011 at 3:01 am
Yeah, I understand how you feel. My husband was diagnosed two years ago and went to stage 4 two months after that. We have gone through Interferon and 3 clinical trials, brain surgery, and two rounds of bio-chemo, with 10 days of whole brain radiation in between. We have scans tomorrow and i don't know what the next day will bring! In addition, my daughter has been disabled since she was 14 (she is now 22). I take care of everything for them both and sometimes I feel stressed and overwhelmed!
I keep a large calendar with every appointment written on it hanging in a spot everyone can see. (my husband loses track of days). This helps with organization and medications, etc.
I try to cook on one day, large easy casseroles or other foods and freeze into portion sizes, then just pop them in the microwave on days when I am tired. Mac & Cheese, Cheesy Chicken & Rice, Lasagne Rollups, french toast, waffles, pancakes, etc, Pretty much anything you can buy in the frozen food section at the grocery store can be cooked at home and frozen.
We have friends that are always offering to help, but do not know what to do. It was hard at first to ask for help, but I allowed them to help with cleaning the house, laundry, etc. Sometimes the LDS ladies who come by want to help with something right then and there. They have cleaned, washed dishes, made beds, whatever needed doing.
Contact your church. They may have a group of volunteers that can help with small home maintenance that your husband may no longer be able to do.
Maybe there is an older child in the neighborhood that would be willing to help the boys with homework sometimes.
Try to make a little time for yourself and do not feel guilty about it (i don't always do this). You need to stay healthy mentally and physically. I go to the coffee shop and enjoy 10 minutes of mocha time, or schedule a pedicure in a massage chair, or just a quick massage. It's ok to talk with someone or cry when you need to, but try to enjoy the laughter when you can.
Hope this helps. I know a little bit of what you are dealing with. I wish you well.
Jan
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- November 1, 2011 at 3:01 am
Yeah, I understand how you feel. My husband was diagnosed two years ago and went to stage 4 two months after that. We have gone through Interferon and 3 clinical trials, brain surgery, and two rounds of bio-chemo, with 10 days of whole brain radiation in between. We have scans tomorrow and i don't know what the next day will bring! In addition, my daughter has been disabled since she was 14 (she is now 22). I take care of everything for them both and sometimes I feel stressed and overwhelmed!
I keep a large calendar with every appointment written on it hanging in a spot everyone can see. (my husband loses track of days). This helps with organization and medications, etc.
I try to cook on one day, large easy casseroles or other foods and freeze into portion sizes, then just pop them in the microwave on days when I am tired. Mac & Cheese, Cheesy Chicken & Rice, Lasagne Rollups, french toast, waffles, pancakes, etc, Pretty much anything you can buy in the frozen food section at the grocery store can be cooked at home and frozen.
We have friends that are always offering to help, but do not know what to do. It was hard at first to ask for help, but I allowed them to help with cleaning the house, laundry, etc. Sometimes the LDS ladies who come by want to help with something right then and there. They have cleaned, washed dishes, made beds, whatever needed doing.
Contact your church. They may have a group of volunteers that can help with small home maintenance that your husband may no longer be able to do.
Maybe there is an older child in the neighborhood that would be willing to help the boys with homework sometimes.
Try to make a little time for yourself and do not feel guilty about it (i don't always do this). You need to stay healthy mentally and physically. I go to the coffee shop and enjoy 10 minutes of mocha time, or schedule a pedicure in a massage chair, or just a quick massage. It's ok to talk with someone or cry when you need to, but try to enjoy the laughter when you can.
Hope this helps. I know a little bit of what you are dealing with. I wish you well.
Jan
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- November 1, 2011 at 3:01 am
Yeah, I understand how you feel. My husband was diagnosed two years ago and went to stage 4 two months after that. We have gone through Interferon and 3 clinical trials, brain surgery, and two rounds of bio-chemo, with 10 days of whole brain radiation in between. We have scans tomorrow and i don't know what the next day will bring! In addition, my daughter has been disabled since she was 14 (she is now 22). I take care of everything for them both and sometimes I feel stressed and overwhelmed!
I keep a large calendar with every appointment written on it hanging in a spot everyone can see. (my husband loses track of days). This helps with organization and medications, etc.
I try to cook on one day, large easy casseroles or other foods and freeze into portion sizes, then just pop them in the microwave on days when I am tired. Mac & Cheese, Cheesy Chicken & Rice, Lasagne Rollups, french toast, waffles, pancakes, etc, Pretty much anything you can buy in the frozen food section at the grocery store can be cooked at home and frozen.
We have friends that are always offering to help, but do not know what to do. It was hard at first to ask for help, but I allowed them to help with cleaning the house, laundry, etc. Sometimes the LDS ladies who come by want to help with something right then and there. They have cleaned, washed dishes, made beds, whatever needed doing.
Contact your church. They may have a group of volunteers that can help with small home maintenance that your husband may no longer be able to do.
Maybe there is an older child in the neighborhood that would be willing to help the boys with homework sometimes.
Try to make a little time for yourself and do not feel guilty about it (i don't always do this). You need to stay healthy mentally and physically. I go to the coffee shop and enjoy 10 minutes of mocha time, or schedule a pedicure in a massage chair, or just a quick massage. It's ok to talk with someone or cry when you need to, but try to enjoy the laughter when you can.
Hope this helps. I know a little bit of what you are dealing with. I wish you well.
Jan
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- November 6, 2011 at 5:41 pm
Hi Lisa, Glad you are feeling better emotionally. My husband had cyberknife on two tumors early this year. No problems at all. Got off the table and felt great immediately after. He has also had crani surgery, Bio-chemo and WBR between August thru Oct.. He has managed all of this without steroids. He has lost a bit of memory, some hearing, and reduced vision in his left eye. His cognititive abilities have also slowed down a bit.
To Robyn, who is your surgeon at MD? We see Papa, Dr Azeem did our Craniotomy, and Dr G was WBR.
Jan
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- November 6, 2011 at 5:41 pm
Hi Lisa, Glad you are feeling better emotionally. My husband had cyberknife on two tumors early this year. No problems at all. Got off the table and felt great immediately after. He has also had crani surgery, Bio-chemo and WBR between August thru Oct.. He has managed all of this without steroids. He has lost a bit of memory, some hearing, and reduced vision in his left eye. His cognititive abilities have also slowed down a bit.
To Robyn, who is your surgeon at MD? We see Papa, Dr Azeem did our Craniotomy, and Dr G was WBR.
Jan
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- November 6, 2011 at 5:41 pm
Hi Lisa, Glad you are feeling better emotionally. My husband had cyberknife on two tumors early this year. No problems at all. Got off the table and felt great immediately after. He has also had crani surgery, Bio-chemo and WBR between August thru Oct.. He has managed all of this without steroids. He has lost a bit of memory, some hearing, and reduced vision in his left eye. His cognititive abilities have also slowed down a bit.
To Robyn, who is your surgeon at MD? We see Papa, Dr Azeem did our Craniotomy, and Dr G was WBR.
Jan
