ImMark

Hi Karen,

I am also Stage 4 (enlarged lymph node under my arm and met on my thigh) and started my first combo treatment of ipilimumab and nivolumab on June 22nd. A couple of weeks afterwards I started feeling fatigued, then had high fever and headaches. I was kept in hospital for a week for observation and then discharged.

Since then my treatment has been delayed due to liver inflammation. I have been prescribed steroids, but then at the 11th hour the inflammation seems to come down again and the steroids put on hold.

I hope to get my second dose this week. But from what I have been told and read from other clinical trial results is that people who cannot complete the treatment have a response rate equal to those who complete the full treatment.

And steroids doesnt mean that the treatment is cancelled. It just means you have to put it on hold for  awhile. My Oncologist said that a delay in treatment wont make a difference. So if you have to stop for a while to get the side effects under control its not the worst thing to happen

So don't be disheartened if you have to stop. It doesnt mean that all hope is lost.

Aaron

Hi Karen,

I am also Stage 4 (enlarged lymph node under my arm and met on my thigh) and started my first combo treatment of ipilimumab and nivolumab on June 22nd. A couple of weeks afterwards I started feeling fatigued, then had high fever and headaches. I was kept in hospital for a week for observation and then discharged.

Since then my treatment has been delayed due to liver inflammation. I have been prescribed steroids, but then at the 11th hour the inflammation seems to come down again and the steroids put on hold.

I hope to get my second dose this week. But from what I have been told and read from other clinical trial results is that people who cannot complete the treatment have a response rate equal to those who complete the full treatment.

And steroids doesnt mean that the treatment is cancelled. It just means you have to put it on hold for  awhile. My Oncologist said that a delay in treatment wont make a difference. So if you have to stop for a while to get the side effects under control its not the worst thing to happen

So don't be disheartened if you have to stop. It doesnt mean that all hope is lost.

Aaron

Hi Karen,

I am also Stage 4 (enlarged lymph node under my arm and met on my thigh) and started my first combo treatment of ipilimumab and nivolumab on June 22nd. A couple of weeks afterwards I started feeling fatigued, then had high fever and headaches. I was kept in hospital for a week for observation and then discharged.

Since then my treatment has been delayed due to liver inflammation. I have been prescribed steroids, but then at the 11th hour the inflammation seems to come down again and the steroids put on hold.

I hope to get my second dose this week. But from what I have been told and read from other clinical trial results is that people who cannot complete the treatment have a response rate equal to those who complete the full treatment.

And steroids doesnt mean that the treatment is cancelled. It just means you have to put it on hold for  awhile. My Oncologist said that a delay in treatment wont make a difference. So if you have to stop for a while to get the side effects under control its not the worst thing to happen

So don't be disheartened if you have to stop. It doesnt mean that all hope is lost.

Aaron