ian0502

Hi Lizz,

I had a similar opp 2 years ago privately at London Bridge Hospital by an excellent melanoma oncologist Dr Mark Harries an open,direct and knowledgeable specialist.He has done research on immutheraphy and a leader in his field.Also at St Geaorges there is Professor Angus Dalglish who is open to alternative approaches such as LDN (low dose naltrexone) and is also well regarded.I am sure it's all frightening and scary as I remember that feeling 2 years ago, but I got very fit, read more than 200 hundred books and research papers and feel ready to take this on. I was diagnosed as stage 3b with unknown primary with a paraneoplstic fibrosis.I am based in UK happy to chat should you wish to know of my experience to date.Number one keep the faith and take control.

Best regards

Ian

Hi Lizz,

I had a similar opp 2 years ago privately at London Bridge Hospital by an excellent melanoma oncologist Dr Mark Harries an open,direct and knowledgeable specialist.He has done research on immutheraphy and a leader in his field.Also at St Geaorges there is Professor Angus Dalglish who is open to alternative approaches such as LDN (low dose naltrexone) and is also well regarded.I am sure it's all frightening and scary as I remember that feeling 2 years ago, but I got very fit, read more than 200 hundred books and research papers and feel ready to take this on. I was diagnosed as stage 3b with unknown primary with a paraneoplstic fibrosis.I am based in UK happy to chat should you wish to know of my experience to date.Number one keep the faith and take control.

Best regards

Ian

Hi Lizz,

I had a similar opp 2 years ago privately at London Bridge Hospital by an excellent melanoma oncologist Dr Mark Harries an open,direct and knowledgeable specialist.He has done research on immutheraphy and a leader in his field.Also at St Geaorges there is Professor Angus Dalglish who is open to alternative approaches such as LDN (low dose naltrexone) and is also well regarded.I am sure it's all frightening and scary as I remember that feeling 2 years ago, but I got very fit, read more than 200 hundred books and research papers and feel ready to take this on. I was diagnosed as stage 3b with unknown primary with a paraneoplstic fibrosis.I am based in UK happy to chat should you wish to know of my experience to date.Number one keep the faith and take control.

Best regards

Ian

Hi Lee;

Like other respondents I was diagnosed as malignant melanoma stage 3b with another condition brought on by the melanoma called paraneoplastic retroperitoneal fibrosis (aurto-immune disease) two years ago this month.Surgery removed a growth 75 by 65 mm and I never noticed ith there as well as 16 other lymph nodes.I had no primary and am on a watch and wait program.The good news is I am active healthy and on a vegan diet which has given me more energy (59 years old) and I mountain bike and exercise on a regular basis.We can change our prognosis by are mind, diet,exercise and I believe supplementation and of course eductaion which this forum is good at.Two years in my auto-immune disease is on hold and no re-occurrence to date and I am trusting this will continue.It is difficult as we all suffer from scan anxiety and think about it but we can affect our outcome. I am based in the UK happy to talk if you want to know what I do.

best regards Ian

Hi Lee;

Like other respondents I was diagnosed as malignant melanoma stage 3b with another condition brought on by the melanoma called paraneoplastic retroperitoneal fibrosis (aurto-immune disease) two years ago this month.Surgery removed a growth 75 by 65 mm and I never noticed ith there as well as 16 other lymph nodes.I had no primary and am on a watch and wait program.The good news is I am active healthy and on a vegan diet which has given me more energy (59 years old) and I mountain bike and exercise on a regular basis.We can change our prognosis by are mind, diet,exercise and I believe supplementation and of course eductaion which this forum is good at.Two years in my auto-immune disease is on hold and no re-occurrence to date and I am trusting this will continue.It is difficult as we all suffer from scan anxiety and think about it but we can affect our outcome. I am based in the UK happy to talk if you want to know what I do.

best regards Ian

Hi Lee;

Like other respondents I was diagnosed as malignant melanoma stage 3b with another condition brought on by the melanoma called paraneoplastic retroperitoneal fibrosis (aurto-immune disease) two years ago this month.Surgery removed a growth 75 by 65 mm and I never noticed ith there as well as 16 other lymph nodes.I had no primary and am on a watch and wait program.The good news is I am active healthy and on a vegan diet which has given me more energy (59 years old) and I mountain bike and exercise on a regular basis.We can change our prognosis by are mind, diet,exercise and I believe supplementation and of course eductaion which this forum is good at.Two years in my auto-immune disease is on hold and no re-occurrence to date and I am trusting this will continue.It is difficult as we all suffer from scan anxiety and think about it but we can affect our outcome. I am based in the UK happy to talk if you want to know what I do.

best regards Ian