hopeFlorida

Forum Replies Created

Viewing 0 reply threads
  • Replies
      hopeFlorida
      Participant

        Hi Betsy! I finished a year of immunotherapy (Opdivo) and had the itchy skin for a year (was tourture), I tried the topical itch steroid cream from the dermotologist and found no releif. I tried to take Benadryl and it did help a tiny bit. Honestly I would have been happy in a nudist camp for the entire year, the itch was awful. Coconut oil helped, as did tepid oatmeal baths. 

        I am only now, after being off for 5 months, am feeling joint pain. I am trying to keep active by walking 3 miles a few times a week and will continue to do yoga twice a week. The pain is worse at night.

        Best of luck! The Opdivo worked great for me – totally stable 18 months after they found it in my liver. I completed a triathlon, half marathon and a couple 5k's since diagnosis. Keep him active!

        Also, I became vegetarian – really almost vegen as I do not eat dairy, gluten, sugar. Only home cooked healthy veggies, some gluten free pasta…just started drinking coffee again. 

        Good luck!

         

    Viewing 0 reply threads