I'm also new, worried and scared. Just got diagnosed about 3 weeks ago, no stage yet. Probably gonna be pretty bad. It's in my infra orbital nerve. I'm at john Hopkins so hopefully have some good doctors. I feel your worry because when your talking about it people have no idea how bad it is. I usually hear, my mother had one cut off her arm she is fine. I'm totally scared to death. I can read and what I read about mine is very bad results. Hoping for a miracle and hopefully God will see me through. Good luck with yours. You for sure are not alone.
Frank
