Hello. I’m new to this forum. I have a somewhat similar story. I was diagnosed with two 2x2cm melanoma tumors in March 2018 via a lung biopsy and follow-up PET/CT scan (after a small “cyst” on my neck was id’d as probable metastatic). After a year of Opdivo treatment (11 infusions) a second full body PET/CT scan 10 days ago indicates no evidence of malignancy. One tumor/nodule is “resolved” from which I gather means it is not there or too small to see (a CT scan 3 mos ago measured it at 2x5mm). However, the other “nodule” (they had different term — I don’t have the report with me), while showing no maliganacy remains at approximately 1x1cm. The Onc said is is likely scar tissue. And I looked at the side by side comparisons of the year old and latest PET/CT scans — there is only black void where there was once two very bright glowing activities. Even so, I’m not celebrating and I do not use the term NED. Time will tell — I have another CT scan in 3 mos with what will be my last scheduled Opdivo treatment. I hope for the same good news. Afterwards, the plan is periodic scans for the next few years or so. Am I being overly cautious with the recent results? Have others had the same emotional reaction of continued uncertainty? I want to feel good about the results, but I just find it hard to be overly cheered. Some thoughtful words of wisdom and experience would greatly appreciated. Thank you.
