ECHO

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      • May 8, 2017 at 2:18 pm
      ECHO
      Participant

        Hi JYC,

        So great to hear from you. Your father's story is quite inspiring! I  I strongly agree that one will never know if a drug works unless actually try it. I believe"keep trying"is the key to overcome the disease.  But I don't have many options now. As you can see, my mother has already tried yervoy+opdivo, and it didn't work after two infusions. So I'm afraid that I have to count on targeted medicine or chemo therapy, but I don't know which is the right one and you know, they're not long-term choices. But I will never ever give up. As you've said, stay rolling!

        • April 29, 2017 at 7:21 am
        ECHO
        Participant

          hi cindy,

          I really appreciate your information! I will look through Jerry's post as well as Bubble's blog to see if there's any new information. I'm glad your mother well tolerates abraxane, and I hope to hear some good news on her scan! As your mother can't tolerate Ketruda, is it possible for her to try Opdivo? Coz i knew some patients that act differently to these two drugs. Also,IDO is also an option. There're some clinical trials. Best wishes! Echo

           

          • April 28, 2017 at 2:37 pm
          ECHO
          Participant

            hello eric,

            i wonder if there's any effective drug that can deal with NRAS mutation? coz i heard that it is a very tricky mutation and no medicine is approved effective to it. look forward to your reply. best wishes !

            • April 26, 2017 at 6:10 am
            ECHO
            Participant

              hello becky,

              congratulations on the recovery ! i  want to know your husband's dosage of IDO and have you heard of any severe side effect? my mother is also mucosal melanoma, she already tried  yervoy+opdivo therapy, but it did't work.so your husband's success is a huge inspriation to us ! look forward to your reply!

              • April 26, 2017 at 6:10 am
              ECHO
              Participant

                hello becky,

                congratulations on the recovery ! i  want to know your husband's dosage of IDO and have you heard of any severe side effect? my mother is also mucosal melanoma, she already tried  yervoy+opdivo therapy, but it did't work.so your husband's success is a huge inspriation to us ! look forward to your reply!

                • April 26, 2017 at 5:35 am
                ECHO
                Participant

                  hi, mark,

                  how do you feel recently? my mother suffer from mucosal melanoma now. i wonder how many IDO drugs you have everyday? like 100mg ,twice a day?what's the recommanded dosage in the clinical trial? and have you heard of any patient that has severe side effect? thank u very much!!!!

                   

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