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Hi Maria,

I am brand new to the forum, and yours was the first post I noticed.  Sending you healing thoughts during this journey.  My husband has now had 2 craniotomies in the span of 5 months, and still has mets to the liver (2).  The brain mets have been aggressive and fast growing, causing us both a great deal of worry.  The last one was treated with gamma knife radiation, where they learned the tumor they were about to treat nearly doubled in size in 12 days because it bled (from 26.92 mm X 21.31mm to 43.2mm X 40.6 mm).  My husband appears completely healthy and normal, except for a very subtle droop on the left side of his mouth from losing a bit of necrosis during the past brain surgery (most likely from the gamma knife the same neurosurgeon performed days earlier). 

My husband is scheduled for immunotherapy (ipo-nivo combo) starting 7/1.  After playing what we call "whack-a-mole" with all his melanoma cutaneous lesions and now metastatic tumors, I am hopeful this systemic treatment will work.  Are the Doctors discussing systemic treatment for you?  The new immunotherapies hold a great deal of promise, even for those with brain mets. 

Wishing  you love and healing, and thanking you for your candor and sharing. 

Kind regards, Elizabeth

Hi Maria,

I am brand new to the forum, and yours was the first post I noticed.  Sending you healing thoughts during this journey.  My husband has now had 2 craniotomies in the span of 5 months, and still has mets to the liver (2).  The brain mets have been aggressive and fast growing, causing us both a great deal of worry.  The last one was treated with gamma knife radiation, where they learned the tumor they were about to treat nearly doubled in size in 12 days because it bled (from 26.92 mm X 21.31mm to 43.2mm X 40.6 mm).  My husband appears completely healthy and normal, except for a very subtle droop on the left side of his mouth from losing a bit of necrosis during the past brain surgery (most likely from the gamma knife the same neurosurgeon performed days earlier). 

My husband is scheduled for immunotherapy (ipo-nivo combo) starting 7/1.  After playing what we call "whack-a-mole" with all his melanoma cutaneous lesions and now metastatic tumors, I am hopeful this systemic treatment will work.  Are the Doctors discussing systemic treatment for you?  The new immunotherapies hold a great deal of promise, even for those with brain mets. 

Wishing  you love and healing, and thanking you for your candor and sharing. 

Kind regards, Elizabeth

Hi Maria,

I am brand new to the forum, and yours was the first post I noticed.  Sending you healing thoughts during this journey.  My husband has now had 2 craniotomies in the span of 5 months, and still has mets to the liver (2).  The brain mets have been aggressive and fast growing, causing us both a great deal of worry.  The last one was treated with gamma knife radiation, where they learned the tumor they were about to treat nearly doubled in size in 12 days because it bled (from 26.92 mm X 21.31mm to 43.2mm X 40.6 mm).  My husband appears completely healthy and normal, except for a very subtle droop on the left side of his mouth from losing a bit of necrosis during the past brain surgery (most likely from the gamma knife the same neurosurgeon performed days earlier). 

My husband is scheduled for immunotherapy (ipo-nivo combo) starting 7/1.  After playing what we call "whack-a-mole" with all his melanoma cutaneous lesions and now metastatic tumors, I am hopeful this systemic treatment will work.  Are the Doctors discussing systemic treatment for you?  The new immunotherapies hold a great deal of promise, even for those with brain mets. 

Wishing  you love and healing, and thanking you for your candor and sharing. 

Kind regards, Elizabeth