DocPain

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      DocPain
      Participant

        Yes, I have had brain MRIs. A baseline MRI and subsequent as I have problems. All clear. 

        DocPain
        Participant

          I had much the same thing happen to me after my third Yervoy treatment. Finally diagnosed with viral encephalitis. Spent a week in the hospital and am at home recuperating. The really scary part is the awareness and confusion and being able to know what's real and what's not. Good luck to your family,!

          DocPain
          Participant

            I've had ongoing seasonal allergies for years now. They can leave you absolute miserable. I gave myself high blood pressure using way too much extra strength Mucinex D. I've had two ipi/novo treatments with a third scheduled next week. In the last two years I have had incredible response using a Neti pot every morning. Now, I use Flonase when needed and a general allergy pill when juniper is high. It flushes out the sinuses with a saline packet and distilled water. It DOES take getting used to, but I love it.

            DocPain
            Participant

              The support in this forum is INCREDIBLE. So fortunate to be part of this community.

              DocPain
              Participant

                I probably was a bit over the top from the beginnings, but I started off joking with the crew in the treatment suite. We have a pretty good relationship. They must see a lot as well.

                DocPain
                Participant

                  I've sliced bananas and frozen them, that helps. Ice chips are okay, but don't help me that much.  What has worked best for me is really pushing the water–64 ounces plus a day.

                  DocPain
                  Participant

                    Thank you, Celeste.

                    DocPain
                    Participant

                      That's what it sounds like. I will probably need to get some coverage simply because I don't know. Thanks for the info!

                      DocPain
                      Participant

                        My wife found some organic ginger drops at the store – morning sickness candy. Between those and peppermints I successfully navigated the nausea. I feel pretty fortunate that is as bad as it got this time.

                        DocPain
                        Participant

                          I should have qualified my original question with mild/moderate/severe. Watching the videos one thing that really stood out to me is that yervoy has a cumulative effect and that just because protocol states four doses not everyone may need four doses.

                          DocPain
                          Participant

                            Thank you, Ed. A bit technical, but at this point the lingo is familiar.

                            DocPain
                            Participant

                              Good news. I'm struggling with the side effects of treatment and it's encouraging to know there is light at the end of the tunnel. Thank you!

                              DocPain
                              Participant

                                Have you had trouble getting comfortable enough to sleep?

                                DocPain
                                Participant

                                  Austin in August?  I know a little something about what that's like. Before I moved to Southern New Mexico I lived in the DFW area and was wearing long sleeves all the time.

                                  Beyond the chills did you have intense body ache?

                                  DocPain
                                  Participant

                                    Thanks for the encouraging words, I appreciate that.

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