Diane F

Hi Susan 🙂  He was diagnosed with melanoma during a craniotomy to remove tumors.  After two months of symptoms of lower spinal cord impact, an MRI of the spine and a lumbar puncture confirmed it was at leptomeningeal stage.  Drs. should have done puncture right away but he appeared too healthy (still working 5 days a week) to have leptomenigeal melanoma.  Wishing you strength and courage right back…this caregiving stuff is not something I ever anticipated-I mean who does…

"SCANXIETY" WOW.  perfect word.  wish I knew about this stage before it came out of nowhere and smacked me hard 🙂  certainly explains the new levels of anxiety never before achieved….thank you for the good wishes and same to you…

I'm so happy for you, Lauren, that you're "no evidence of disease".  That's amazing.  And thanks for the internet hug 🙂  This community is really lovely…

Thank you so much, Rich, for responding. I guess this is yet another stage in the cancer fight…the anxiety of waiting to find out if all we've been through has been successful or not.  I love your word, "hopeyness".  That's great…I'm filing that away 🙂

Diane