cimjones

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      cimjones
      Participant

        Thanks everyone for responding. I knew what I was getting myself into with this test, especially given that it is so new that there are no follow up protocols. I was obviously hoping for that class 1 designation, but given this one, it takes a little time to figure out where to go with it. 

        I'm gathering that the test itself is controversial because of the smaller sample size and the newness of it. And I suppose the what to do next question faces everyone on this board whether they've had this test or not. 

        I'll talk to my oncologist this week and figure out an approach, and I can report back on this thread if helpful. I did want to just thank everyone for responding. I have a lot of friends and family supporting me, but they aren't going through all this, so it's nice to think about a community of shared experiences and support. I'm not mad about the first response, and maybe there is a track record of drug company people fake posting about things to shill products. That would be a shame if so. But I assure you that's not me, and I'm just trying to navigate this complicated and new world like everyone else here. 

        Onward, and may everyone reading have the best day possible…

        cimjones
        Participant

          Thanks everyone for responding. I knew what I was getting myself into with this test, especially given that it is so new that there are no follow up protocols. I was obviously hoping for that class 1 designation, but given this one, it takes a little time to figure out where to go with it. 

          I'm gathering that the test itself is controversial because of the smaller sample size and the newness of it. And I suppose the what to do next question faces everyone on this board whether they've had this test or not. 

          I'll talk to my oncologist this week and figure out an approach, and I can report back on this thread if helpful. I did want to just thank everyone for responding. I have a lot of friends and family supporting me, but they aren't going through all this, so it's nice to think about a community of shared experiences and support. I'm not mad about the first response, and maybe there is a track record of drug company people fake posting about things to shill products. That would be a shame if so. But I assure you that's not me, and I'm just trying to navigate this complicated and new world like everyone else here. 

          Onward, and may everyone reading have the best day possible…

          cimjones
          Participant

            Thanks everyone for responding. I knew what I was getting myself into with this test, especially given that it is so new that there are no follow up protocols. I was obviously hoping for that class 1 designation, but given this one, it takes a little time to figure out where to go with it. 

            I'm gathering that the test itself is controversial because of the smaller sample size and the newness of it. And I suppose the what to do next question faces everyone on this board whether they've had this test or not. 

            I'll talk to my oncologist this week and figure out an approach, and I can report back on this thread if helpful. I did want to just thank everyone for responding. I have a lot of friends and family supporting me, but they aren't going through all this, so it's nice to think about a community of shared experiences and support. I'm not mad about the first response, and maybe there is a track record of drug company people fake posting about things to shill products. That would be a shame if so. But I assure you that's not me, and I'm just trying to navigate this complicated and new world like everyone else here. 

            Onward, and may everyone reading have the best day possible…

            cimjones
            Participant

              Am I being accused of something here? I'm new to this forum because I'm newly diagnosed, and I guess I don't know all the rules here. I'm sorry if I mistepped, but I don't think the age of my profile should be a relevant part of the conversation. My oncologist recommended the test, and I go back to talk about the results and my next steps next week. I'm looking for someone who

              might have some advice or thoughts, not to be trolled with this kind of response. I thought this would be a supportive forum, one where people facing this dreadful diagnosis could come to discuss issues in safety without the crap that comes in other internet forums. Guess I might be wrong.  

              cimjones
              Participant

                Am I being accused of something here? I'm new to this forum because I'm newly diagnosed, and I guess I don't know all the rules here. I'm sorry if I mistepped, but I don't think the age of my profile should be a relevant part of the conversation. My oncologist recommended the test, and I go back to talk about the results and my next steps next week. I'm looking for someone who

                might have some advice or thoughts, not to be trolled with this kind of response. I thought this would be a supportive forum, one where people facing this dreadful diagnosis could come to discuss issues in safety without the crap that comes in other internet forums. Guess I might be wrong.  

                cimjones
                Participant

                  Am I being accused of something here? I'm new to this forum because I'm newly diagnosed, and I guess I don't know all the rules here. I'm sorry if I mistepped, but I don't think the age of my profile should be a relevant part of the conversation. My oncologist recommended the test, and I go back to talk about the results and my next steps next week. I'm looking for someone who

                  might have some advice or thoughts, not to be trolled with this kind of response. I thought this would be a supportive forum, one where people facing this dreadful diagnosis could come to discuss issues in safety without the crap that comes in other internet forums. Guess I might be wrong.  

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