Ch256706

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      • July 31, 2019 at 1:59 pm
      Ch256706
      Participant
        Great information Jackie. I received a letter yesterday from the insurance that said “Your records show that you have no known disease in your body. PET imaging is not supported as routine follow up test when you are not receiving active treatment” along with some other information. However they denied my PET three months ago when I was receiving treatment. I think it is because nothing has ever showed on a scan they believe CT to be the routine test at this point. Did your husband do treatment? Best of luck to you all.
        • July 31, 2019 at 1:04 pm
        Ch256706
        Participant
          Thank you! I’ve never had a brain mri and will be asking for one.
          • July 31, 2019 at 1:03 pm
          Ch256706
          Participant
            Thank you for the information!! Do you mind me asking how long you we’re stage three before progressing? Did you do treatment at stage 3?
            • July 29, 2019 at 12:34 am
            Ch256706
            Participant
              I am a worrier too which is why I had no doubt in my mind I would do the treatment. The immunotherapy caused me to have hypothyroidism so now I take thyroid medicine everyday. I’m not sure if this will be permanent or if my thyroid function will come back. They check bloodwork all the time and manage the medicine accordingly!
              • July 27, 2019 at 5:25 pm
              Ch256706
              Participant
                I was diagnosed with IIIa last year and just finished 26 treatments of opdivo. My oncologist said we could watch and wait or continue with immunotherapy as I had microscopic cells to one node insurance would cover it. There was no way I could watch and wait as I had a 6 month old at the time. Wanted to do everything and anything to prevent recurrence. I handled the treatment extremely well. Side effects mostly with my thyroid and a little rash. Let me know if you have any questions!
                • May 15, 2019 at 1:13 am
                Ch256706
                Participant
                  Thank you for responding! I never get my nails done it was for a special occasion and I definitely won’t be going back!!
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