Hello Heidi and Mary, I too was diagnosed with mucosal melanoma in Feb. of 2014. I had gone to the gyno because I thought that my bladder had dropped. She thought I had a carunckle and ordered surgery before the biopsy. A uralogist performed the surgery and everyone was surprised when the diagnosis came back Mucosal Melonoma! They didn't know what to do with me. My daughter searched the internet and found a doctor who specialized in melanoma at a cancer hospital and had seen patients with mucosal melanoma. We are very small in numbers. I had a second surgery to clear the margins of the first surgery and then 30 sessions of radiation. I did not have any lymph nodes checked at the time of the first surgery but subsequent PET/CT scans have shown no recurrence. My scans are now six months apart from every three months and I feel fine. I go to Dana Farber Cancer Institute in Boston.
