24hourmom

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      24hourmom
      Participant

        I reread my intial post and I just need to add that I am not posting to complain but I just feel so overwhelmed for him.

        I am so scared. I want to be supportive and want to make sure we're on the right track. God forbid he continues to drive and something happens to him or someone else.  The daily trips to radiation seem to take everything out of him and he seems to be depressed. He was on an antidepressant for a while but the doctor discontinued it due to fatigue side effects. Combined with the Zelboraf, he was so exhausted.

         

         

        24hourmom
        Participant

          I reread my intial post and I just need to add that I am not posting to complain but I just feel so overwhelmed for him.

          I am so scared. I want to be supportive and want to make sure we're on the right track. God forbid he continues to drive and something happens to him or someone else.  The daily trips to radiation seem to take everything out of him and he seems to be depressed. He was on an antidepressant for a while but the doctor discontinued it due to fatigue side effects. Combined with the Zelboraf, he was so exhausted.

           

           

          24hourmom
          Participant

            I reread my intial post and I just need to add that I am not posting to complain but I just feel so overwhelmed for him.

            I am so scared. I want to be supportive and want to make sure we're on the right track. God forbid he continues to drive and something happens to him or someone else.  The daily trips to radiation seem to take everything out of him and he seems to be depressed. He was on an antidepressant for a while but the doctor discontinued it due to fatigue side effects. Combined with the Zelboraf, he was so exhausted.

             

             

            24hourmom
            Participant

              My husband started zelboraf in September and  he had such wonderful shrinkage in all areas of tumor burden on his scan results in December that all of his doctors called it a miracle. The only effects he had was dry/itchy patches of skin, complete exhaustion and joint pain. The joint pain would move, it wasn't necessarily in the same places but just continually achey.

              24hourmom
              Participant

                My husband started zelboraf in September and  he had such wonderful shrinkage in all areas of tumor burden on his scan results in December that all of his doctors called it a miracle. The only effects he had was dry/itchy patches of skin, complete exhaustion and joint pain. The joint pain would move, it wasn't necessarily in the same places but just continually achey.

                24hourmom
                Participant

                  My husband started zelboraf in September and  he had such wonderful shrinkage in all areas of tumor burden on his scan results in December that all of his doctors called it a miracle. The only effects he had was dry/itchy patches of skin, complete exhaustion and joint pain. The joint pain would move, it wasn't necessarily in the same places but just continually achey.

                  24hourmom
                  Participant

                    Good luck on your scans tomorrow. Thank you for the support. WBT hasn't made him sick but horrible skin rashes and burning. He's so completely exhausted. I would love to go to Charleston but not under those circumstances, of course.

                    I would love to talk to you, too.

                    24hourmom
                    Participant

                      Good luck on your scans tomorrow. Thank you for the support. WBT hasn't made him sick but horrible skin rashes and burning. He's so completely exhausted. I would love to go to Charleston but not under those circumstances, of course.

                      I would love to talk to you, too.

                      24hourmom
                      Participant

                        Good luck on your scans tomorrow. Thank you for the support. WBT hasn't made him sick but horrible skin rashes and burning. He's so completely exhausted. I would love to go to Charleston but not under those circumstances, of course.

                        I would love to talk to you, too.

                        24hourmom
                        Participant

                          Thank you, Susan. I appreciate it very much. You and your husband have had a wonderful marriage. I don't blame you for wanting things to stay the way they had been.  I hope he can restart the Yervoy next week.

                          My husband and I have been married for 16 years and my children are 14, 12 and 8. I realize that the reality of this disease is so hard but I am still hoping for a miracle. I keep telling him that he deserves to beat this as much as anyone.

                          I didn't think you suggested not to post here, I just reread my posts and I hope I didn't come across as insensitive. It's so hard for me to convey what I am trying to say over the internet sometimes.

                          24hourmom
                          Participant

                            Thank you, Susan. I appreciate it very much. You and your husband have had a wonderful marriage. I don't blame you for wanting things to stay the way they had been.  I hope he can restart the Yervoy next week.

                            My husband and I have been married for 16 years and my children are 14, 12 and 8. I realize that the reality of this disease is so hard but I am still hoping for a miracle. I keep telling him that he deserves to beat this as much as anyone.

                            I didn't think you suggested not to post here, I just reread my posts and I hope I didn't come across as insensitive. It's so hard for me to convey what I am trying to say over the internet sometimes.

                            24hourmom
                            Participant

                              Thank you, Susan. I appreciate it very much. You and your husband have had a wonderful marriage. I don't blame you for wanting things to stay the way they had been.  I hope he can restart the Yervoy next week.

                              My husband and I have been married for 16 years and my children are 14, 12 and 8. I realize that the reality of this disease is so hard but I am still hoping for a miracle. I keep telling him that he deserves to beat this as much as anyone.

                              I didn't think you suggested not to post here, I just reread my posts and I hope I didn't come across as insensitive. It's so hard for me to convey what I am trying to say over the internet sometimes.

                              24hourmom
                              Participant

                                Thank you for the link. I will post there. I'm sorry if this post was in the wrong place. I'd hoped possibly someone going through it could give me their point of view or how to be more supportive. Even what I may be able to expect? I realize no one has a crystal ball and every situation is different but I just feel like I'm walking on eggshells and don't recognize our life anymore.

                                24hourmom
                                Participant

                                  Thank you for the link. I will post there. I'm sorry if this post was in the wrong place. I'd hoped possibly someone going through it could give me their point of view or how to be more supportive. Even what I may be able to expect? I realize no one has a crystal ball and every situation is different but I just feel like I'm walking on eggshells and don't recognize our life anymore.

                                  24hourmom
                                  Participant

                                    Thank you for the link. I will post there. I'm sorry if this post was in the wrong place. I'd hoped possibly someone going through it could give me their point of view or how to be more supportive. Even what I may be able to expect? I realize no one has a crystal ball and every situation is different but I just feel like I'm walking on eggshells and don't recognize our life anymore.

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