Zelboraf working-BRAF V600D

Forums General Melanoma Community Zelboraf working-BRAF V600D

  • Post
    awillett1991
    Participant
      I feel like the last unicorn being a BRAF V600D but I’m posting this in the hopes it can help someone else. I can’t be the only one. Despite there being no data available on its efficacy, Dr Sosman believed that Zelboraf would work on my tumor. I started 4-17 and was on and off for the horrid rash, then joint pain. I also suffer through the other many nasty side effects like so many people. I have been steady on 3 pills 2 times a day for 9 weeks or so. In April I had a cardiac met measuring 24x25mm and yesterday It measured 18x16mm.

      I feel like the last unicorn being a BRAF V600D but I’m posting this in the hopes it can help someone else. I can’t be the only one. Despite there being no data available on its efficacy, Dr Sosman believed that Zelboraf would work on my tumor. I started 4-17 and was on and off for the horrid rash, then joint pain. I also suffer through the other many nasty side effects like so many people. I have been steady on 3 pills 2 times a day for 9 weeks or so. In April I had a cardiac met measuring 24x25mm and yesterday It measured 18x16mm. It’s working and we are rejoicing for however long it lasts.

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    • Replies
        Gene_S
        Participant

          Great news keep celebrating and keep beating this monster.

          Judy

          Gene_S
          Participant

            Great news keep celebrating and keep beating this monster.

            Judy

            Gene_S
            Participant

              Great news keep celebrating and keep beating this monster.

              Judy

              Tina D
              Participant

                Wonderful news! So glad you are getting good reports! Thank you for posting these encouraging results…

                Tina D
                Participant

                  Wonderful news! So glad you are getting good reports! Thank you for posting these encouraging results…

                  Tina D
                  Participant

                    Wonderful news! So glad you are getting good reports! Thank you for posting these encouraging results…

                    Richard_K
                    Participant

                      Great to hear, thanks for sharing.

                      Dick

                      Richard_K
                      Participant

                        Great to hear, thanks for sharing.

                        Dick

                        Richard_K
                        Participant

                          Great to hear, thanks for sharing.

                          Dick

                          JerryfromFauq
                          Participant

                            Great!

                            JerryfromFauq
                            Participant

                              Great!

                              JerryfromFauq
                              Participant

                                Great!

                                aldakota22
                                Participant

                                  Great positive post.Will keep you in my prayers for contiued success.All the best.  Al

                                  aldakota22
                                  Participant

                                    Great positive post.Will keep you in my prayers for contiued success.All the best.  Al

                                    aldakota22
                                    Participant

                                      Great positive post.Will keep you in my prayers for contiued success.All the best.  Al

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