Zelbarof & Prednisone Roll Call

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    • January 18, 2013 at 4:51 pm
    NYKaren
    Participant

      As many of you know, I've been on Zel for about a month now with few side-effects…SCC removed from back of knee, lots of skin tags around my eyes, some joint pain & very slight neurapathy.  I do take Benfotaime(sp??) 500  mg/day,  so perhaps the neurapathy & fatigue would have been worse.

      As many of you know, I've been on Zel for about a month now with few side-effects…SCC removed from back of knee, lots of skin tags around my eyes, some joint pain & very slight neurapathy.  I do take Benfotaime(sp??) 500  mg/day,  so perhaps the neurapathy & fatigue would have been worse.

      Anyway, past few days, my right elbow has been swollen and painful to even extend arm.  Celebrex (which I had been on for the slight-medium joint pain)  or Alleve alone didn't work, Dilaudid 4mg did absolutely nothing, so Onc. started me on 5 mg. pred/day.  Yesterday (first day)  I stupidly took 10 mg in the a.m. because I forgot the pills I had were 10 mg & didn't break in half plus 2 Alleve morning & night. (pred was and is only 5 mg. in the a.m.)

      This morning I woke up depressed (no surprise there) and pain was finaly a little better, and I took the 5 mg. and 2 Alleve.  BTW, I am on nexium 40 mg 2x/day.  A little nauseous, which is a good thing because I've been eating like there's no tomorrow before the Pred.  No nausea on the Zel.

      I did take much larger doses of Pred when I had colitis from ipi, then hydrocortosine when I had adrenal insufficiency from the Pred! 

      SO, I am interested in hearing others' experiences/dosages w/Zel and Pred.  if it's not for public consumption but you're willing to share, please message me.

      THANK YOU VERY MUCH!

      Karen

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        • January 18, 2013 at 6:55 pm
        awillett1991
        Participant
          I’d only add they trial and error I’ve learned not to take Zel & Pred together. I’m only on 40mg of Nexium in the morning, so 6:00 Nexium, 7:00 Zelboraf, 8:00 Pred. Still once a month or so in the evening I’d get a terrible stomachache/burping/vomiting and miss or “lose” a dose, but was back on track feeling great the next morning. I’m very sensitive to it though, I’ve had awful heart pounding at just 10 mg and the mood swings, awful. 5 was just right for me.

          Amy

          • January 18, 2013 at 6:55 pm
          awillett1991
          Participant
            I’d only add they trial and error I’ve learned not to take Zel & Pred together. I’m only on 40mg of Nexium in the morning, so 6:00 Nexium, 7:00 Zelboraf, 8:00 Pred. Still once a month or so in the evening I’d get a terrible stomachache/burping/vomiting and miss or “lose” a dose, but was back on track feeling great the next morning. I’m very sensitive to it though, I’ve had awful heart pounding at just 10 mg and the mood swings, awful. 5 was just right for me.

            Amy

            • January 18, 2013 at 6:55 pm
            awillett1991
            Participant
              I’d only add they trial and error I’ve learned not to take Zel & Pred together. I’m only on 40mg of Nexium in the morning, so 6:00 Nexium, 7:00 Zelboraf, 8:00 Pred. Still once a month or so in the evening I’d get a terrible stomachache/burping/vomiting and miss or “lose” a dose, but was back on track feeling great the next morning. I’m very sensitive to it though, I’ve had awful heart pounding at just 10 mg and the mood swings, awful. 5 was just right for me.

              Amy

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