Wounded Warrior returns from IL-2

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  • Post
    • October 3, 2011 at 10:34 pm
    NYKaren
    Participant

      Hi all,

      Returned last (not this) past Saturday nite from second session of IL-2 at Yale.  It took about a week until I could function at all–it was correct that the second time is harder.

      I didn't have many side effects the first time, just itching and a little diarhhea.

      This time, the itch was there from day 1 (and hasn't stopped yet) the diahhrea accured much sooner.

      I experienced much more confusion.  No appetite whatsoever.  Bringing protein drinks was a great idea.

      Hi all,

      Returned last (not this) past Saturday nite from second session of IL-2 at Yale.  It took about a week until I could function at all–it was correct that the second time is harder.

      I didn't have many side effects the first time, just itching and a little diarhhea.

      This time, the itch was there from day 1 (and hasn't stopped yet) the diahhrea accured much sooner.

      I experienced much more confusion.  No appetite whatsoever.  Bringing protein drinks was a great idea.

      And yet, Dr. Sznol said that very few peope finish all the bags.  Now he tells me–as if I had a choice!

      Today was the first day I drove and tomorrow I'm going to attempt work.  Normally I'd wait till next Monday, but I want to make sure I have time left for the rest of the year.

       

      I'm still using Aldera, and much of the area has scabbed over and fallen off.  Still pigment underneath–can't tell if they're flat or not.  Called Sznol's office; he said keep using it.

      So, scans again in 7 weeks, then decide if we do this again

      Thanks all for your support; I'll keep ya posted.

      karen

       

       

    Viewing 7 reply threads
    • Replies
        • October 3, 2011 at 11:45 pm
        triciad
        Participant

          Good luck and keep up the positive attitude!  If you are a responder…totally worth it!  You're in my prayers for a complete response.

          Tricia

          • October 3, 2011 at 11:45 pm
          triciad
          Participant

            Good luck and keep up the positive attitude!  If you are a responder…totally worth it!  You're in my prayers for a complete response.

            Tricia

            • October 4, 2011 at 12:40 am
            Karin L
            Participant

              If this helps, I felt REAL good in the 3rd week after treatment each round.  Hang in there Karen!  Keep in mind side affects are cumulative with IL2 but overall tolerable.

               

              Karin

              • October 4, 2011 at 12:40 am
              Karin L
              Participant

                If this helps, I felt REAL good in the 3rd week after treatment each round.  Hang in there Karen!  Keep in mind side affects are cumulative with IL2 but overall tolerable.

                 

                Karin

                • October 4, 2011 at 7:30 am
                JerryfromFauq
                Participant

                  I was told the average # of bags taken per week is 7.  My Onc (Who haas worked with IL-2 since the 1980's) discussed whether or not to take each bag with me.  If the bloodwork, blood presssure  and urine output were not within proper limits he would not do them, otherwise he left it up to me whether or not I felt up to takiing each bag.

                  • October 4, 2011 at 7:30 am
                  JerryfromFauq
                  Participant

                    I was told the average # of bags taken per week is 7.  My Onc (Who haas worked with IL-2 since the 1980's) discussed whether or not to take each bag with me.  If the bloodwork, blood presssure  and urine output were not within proper limits he would not do them, otherwise he left it up to me whether or not I felt up to takiing each bag.

                    • October 4, 2011 at 3:04 pm
                    jim Breitfeller
                    Participant

                      Karen,

                      When doiing HD IL-2, listen to your body. It will tell you when to stop the treatment/Bags.

                      More doesn't mean better. You can over tax your immune system and cause major problems with autoimmuinity among other things.

                      As for the Aldera, here are some of my Pics.

                       

                      Best regards,

                      Jimmy B

                      • October 4, 2011 at 3:04 pm
                      jim Breitfeller
                      Participant

                        Karen,

                        When doiing HD IL-2, listen to your body. It will tell you when to stop the treatment/Bags.

                        More doesn't mean better. You can over tax your immune system and cause major problems with autoimmuinity among other things.

                        As for the Aldera, here are some of my Pics.

                         

                        Best regards,

                        Jimmy B

                          • October 4, 2011 at 8:06 pm
                          NYKaren
                          Participant

                            Thanks, guys.  Jimmy, the only time the Aldera caused any reaction whatsover was once I started the IL-2.  I mean nothing!  As soon a I was on both, it all crusted over.  a lot of it has fallen off, leaving flat, pigmented skin.  Boy do I hope this works!

                            • October 4, 2011 at 8:06 pm
                            NYKaren
                            Participant

                              Thanks, guys.  Jimmy, the only time the Aldera caused any reaction whatsover was once I started the IL-2.  I mean nothing!  As soon a I was on both, it all crusted over.  a lot of it has fallen off, leaving flat, pigmented skin.  Boy do I hope this works!

                              • October 4, 2011 at 8:06 pm
                              NYKaren
                              Participant

                                Thanks, guys.  Jimmy, the only time the Aldera caused any reaction whatsover was once I started the IL-2.  I mean nothing!  As soon a I was on both, it all crusted over.  a lot of it has fallen off, leaving flat, pigmented skin.  Boy do I hope this works!

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