When is a PET scan indicated?

Forums General Melanoma Community When is a PET scan indicated?

  • Post
    Mamapegela
    Participant

      I am newly diagnosed with a positive lymph node in my neck (biopsied because it was enlarged 4 months after having a WLE of a melanoma on my neck).  I am getting an MRI brain and CT neck, chest and abdoment this week, then going to the melanoma clinic at University of Michigan at the end of the month to meet the team and find out my stage, plan, etc.  I'm trying hard not to get ahead of myself and to trust the process but I am concerned because a PET scan was not ordered.  Is this not routinely done at this early point?

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    • Replies
        jennunicorn
        Participant

          I think different doctors do scans differently. Some only do CT some do PET/CT combo. My doctors at UCSF are very strong about PET/CT combos instead of one or the other, but other doctors think differently about it. Not entirely sure why. A CT is good enough to check and make sure you're all good inside, if there are any mets they can be seen on CT just fine, so I don't believe anything would be missed.

          All the best,

          jennunicorn
          Participant

            I think different doctors do scans differently. Some only do CT some do PET/CT combo. My doctors at UCSF are very strong about PET/CT combos instead of one or the other, but other doctors think differently about it. Not entirely sure why. A CT is good enough to check and make sure you're all good inside, if there are any mets they can be seen on CT just fine, so I don't believe anything would be missed.

            All the best,

              Mamapegela
              Participant

                Thank you Jenn.  I have read several of your posts and am grateful that you are sharing your knowledge and experiences with those of us who are newly diagnosed.  It really really helps!  

                heartPeggy

                Mamapegela
                Participant

                  Thank you Jenn.  I have read several of your posts and am grateful that you are sharing your knowledge and experiences with those of us who are newly diagnosed.  It really really helps!  

                  heartPeggy

                  jennunicorn
                  Participant

                    So good to hear, I know it helps me a lot to read about others experiences and knowledge. It helps not to feel alone in all this.

                    Sending good thoughts your way, hope the scans go well!

                    jennunicorn
                    Participant

                      So good to hear, I know it helps me a lot to read about others experiences and knowledge. It helps not to feel alone in all this.

                      Sending good thoughts your way, hope the scans go well!

                      jennunicorn
                      Participant

                        So good to hear, I know it helps me a lot to read about others experiences and knowledge. It helps not to feel alone in all this.

                        Sending good thoughts your way, hope the scans go well!

                        Mamapegela
                        Participant

                          Thank you Jenn.  I have read several of your posts and am grateful that you are sharing your knowledge and experiences with those of us who are newly diagnosed.  It really really helps!  

                          heartPeggy

                          Christine.P
                          Participant

                            I was told thta one thing a PET scan can do that the CT scan cannot is detect abnormalities in extremities (arms and legs). My primary melanomas were both on limbs (right calf and left elbow), so my new oncologist did order a PET scan (which, in our hospital) is also a CT scan at the same time. Perhaps if you don't have any primary tumors in your arms or legs, the PET scan is not necessary at ths time? 

                            This is just based on my experience. I am stage 4A and just recently changed doctors and hospitals to be part of a melanoma program and am really glad I made the switch. 

                             

                             

                            Christine.P
                            Participant

                              I was told thta one thing a PET scan can do that the CT scan cannot is detect abnormalities in extremities (arms and legs). My primary melanomas were both on limbs (right calf and left elbow), so my new oncologist did order a PET scan (which, in our hospital) is also a CT scan at the same time. Perhaps if you don't have any primary tumors in your arms or legs, the PET scan is not necessary at ths time? 

                              This is just based on my experience. I am stage 4A and just recently changed doctors and hospitals to be part of a melanoma program and am really glad I made the switch. 

                               

                               

                              Christine.P
                              Participant

                                I was told thta one thing a PET scan can do that the CT scan cannot is detect abnormalities in extremities (arms and legs). My primary melanomas were both on limbs (right calf and left elbow), so my new oncologist did order a PET scan (which, in our hospital) is also a CT scan at the same time. Perhaps if you don't have any primary tumors in your arms or legs, the PET scan is not necessary at ths time? 

                                This is just based on my experience. I am stage 4A and just recently changed doctors and hospitals to be part of a melanoma program and am really glad I made the switch. 

                                 

                                 

                              jennunicorn
                              Participant

                                I think different doctors do scans differently. Some only do CT some do PET/CT combo. My doctors at UCSF are very strong about PET/CT combos instead of one or the other, but other doctors think differently about it. Not entirely sure why. A CT is good enough to check and make sure you're all good inside, if there are any mets they can be seen on CT just fine, so I don't believe anything would be missed.

                                All the best,

                                MoiraM
                                Participant

                                  At the beginning, before I moved to the care of my melanoma team, I had an MRI scan of the brain, which was clear, and  a CT scan of the body that showed I had a lump on my abdomen inner wall as well as the lumps in my lymph nodes in my underarm. It was after this that I was referred to my melanoma team.

                                  The melanoma team decided to order a PET scan to check out the lump in my abdomen but that was further down the line.

                                   

                                  MoiraM
                                  Participant

                                    At the beginning, before I moved to the care of my melanoma team, I had an MRI scan of the brain, which was clear, and  a CT scan of the body that showed I had a lump on my abdomen inner wall as well as the lumps in my lymph nodes in my underarm. It was after this that I was referred to my melanoma team.

                                    The melanoma team decided to order a PET scan to check out the lump in my abdomen but that was further down the line.

                                     

                                    MoiraM
                                    Participant

                                      At the beginning, before I moved to the care of my melanoma team, I had an MRI scan of the brain, which was clear, and  a CT scan of the body that showed I had a lump on my abdomen inner wall as well as the lumps in my lymph nodes in my underarm. It was after this that I was referred to my melanoma team.

                                      The melanoma team decided to order a PET scan to check out the lump in my abdomen but that was further down the line.

                                       

                                      jenny22
                                      Participant

                                        Hi-

                                        I had a pet scan when my mealnoma was first found in 2013….at which point i was stage 1B……since that time I've had 2 intransits or local reucrrenceses…..and am now having CT scans of Neck, Chest, Abdomen, and Pelvis every 4 or so months…with a BRAIN MRI done annually……this all being done in the absence of symptoms ro anything new, and as a matter of course.  Should something pop up or creae new cause for alarm scans would be done at that point too.

                                        I dont think PET scans are dobe as routinely after intital staging and diagnosis.  (But it does vary by location)

                                        As an FYI, my care has been at MSK and NYU.

                                         

                                        Bets,

                                        jenny

                                         

                                         

                                        jenny22
                                        Participant

                                          Hi-

                                          I had a pet scan when my mealnoma was first found in 2013….at which point i was stage 1B……since that time I've had 2 intransits or local reucrrenceses…..and am now having CT scans of Neck, Chest, Abdomen, and Pelvis every 4 or so months…with a BRAIN MRI done annually……this all being done in the absence of symptoms ro anything new, and as a matter of course.  Should something pop up or creae new cause for alarm scans would be done at that point too.

                                          I dont think PET scans are dobe as routinely after intital staging and diagnosis.  (But it does vary by location)

                                          As an FYI, my care has been at MSK and NYU.

                                           

                                          Bets,

                                          jenny

                                           

                                           

                                            Mamapegela
                                            Participant

                                              Thanks for your input.  Where was your melanoma initially?  You mentioned CT of your neck, which is where mine is.

                                              Peg

                                              Mamapegela
                                              Participant

                                                Thanks for your input.  Where was your melanoma initially?  You mentioned CT of your neck, which is where mine is.

                                                Peg

                                                jenny22
                                                Participant

                                                  Peg-

                                                  Mine was on my neck also…and both the recurrences have been tiny, near the intital sight…..after the 2nd one I did a short course, of hi dose radiation to help prevent further recurrences in that area……among other treatments.

                                                   

                                                  Best,

                                                  Jenny

                                                   

                                                  jenny22
                                                  Participant

                                                    Peg-

                                                    Mine was on my neck also…and both the recurrences have been tiny, near the intital sight…..after the 2nd one I did a short course, of hi dose radiation to help prevent further recurrences in that area……among other treatments.

                                                     

                                                    Best,

                                                    Jenny

                                                     

                                                    jenny22
                                                    Participant

                                                      Peg-

                                                      Mine was on my neck also…and both the recurrences have been tiny, near the intital sight…..after the 2nd one I did a short course, of hi dose radiation to help prevent further recurrences in that area……among other treatments.

                                                       

                                                      Best,

                                                      Jenny

                                                       

                                                      Mamapegela
                                                      Participant

                                                        Jenny, I'm just curious- did you have a neck dissection? & did they take your parotid gland?

                                                        Thank you, 

                                                        Peg

                                                        Mamapegela
                                                        Participant

                                                          Jenny, I'm just curious- did you have a neck dissection? & did they take your parotid gland?

                                                          Thank you, 

                                                          Peg

                                                          Mamapegela
                                                          Participant

                                                            Jenny, I'm just curious- did you have a neck dissection? & did they take your parotid gland?

                                                            Thank you, 

                                                            Peg

                                                            Mamapegela
                                                            Participant

                                                              Thanks for your input.  Where was your melanoma initially?  You mentioned CT of your neck, which is where mine is.

                                                              Peg

                                                            jenny22
                                                            Participant

                                                              Hi-

                                                              I had a pet scan when my mealnoma was first found in 2013….at which point i was stage 1B……since that time I've had 2 intransits or local reucrrenceses…..and am now having CT scans of Neck, Chest, Abdomen, and Pelvis every 4 or so months…with a BRAIN MRI done annually……this all being done in the absence of symptoms ro anything new, and as a matter of course.  Should something pop up or creae new cause for alarm scans would be done at that point too.

                                                              I dont think PET scans are dobe as routinely after intital staging and diagnosis.  (But it does vary by location)

                                                              As an FYI, my care has been at MSK and NYU.

                                                               

                                                              Bets,

                                                              jenny

                                                               

                                                               

                                                              BrianP
                                                              Participant

                                                                Peggy,

                                                                I think it's pretty "standard" to order the CT first.  There are some advantages and disadvantages to both but cost may be one of the factors.  It's my understanding that PETs cost more than CTs.

                                                                Over the course of the last 3 years I've probably had a dozen CTs and only about 3 PETs.  Each time I got a PET it was to see if we could find out any additional info on a particular area of concern.  PETs can also sometimes help find things that CTs can't due to the glowing effect that PETs give to melanoma.

                                                                Here's a brief summary of CTs and PETs:

                                                                Positron emission tomography (PET) and computerized tomography (CT) are both state-of-the-art imaging tools that allow physicians to pinpoint the location of cancer within the body before making treatment recommendations. The highly sensitive PET scan images the biology of disorders at the molecular level, while the CT scan provides a detailed picture of the body's internal anatomy. The PET/CT scan combines the strengths of these two well-established imaging modalities into a single scan.

                                                                A CT scan is able to detect and localize changes in the body structure or anatomy, such as the size, shape and exact location of an abnormal growth, a sizeable tumor or a musculoskeletal injury.

                                                                A PET scan is very different from an ultrasound, X-ray, MRI, or CT scan. A PET scan allows the physician to distinguish between living and dead tissue or between benign and malignant disorders. Since a PET scan images the biology of disorders at the molecular level, it can help the physician detect abnormalities in cellular activity at a very early stage, generally before anatomic changes are visible.

                                                                Alone, each imaging test has particular benefits and limitations but by combining these two state-of the-art technologies, physicians can more accurately diagnose, localize and monitor cancer, as well as heart disease and certain brain disorders.

                                                                Good luck Peggy.  Glad to hear you are going to a melanoma specialist.

                                                                 

                                                                BrianP
                                                                Participant

                                                                  Peggy,

                                                                  I think it's pretty "standard" to order the CT first.  There are some advantages and disadvantages to both but cost may be one of the factors.  It's my understanding that PETs cost more than CTs.

                                                                  Over the course of the last 3 years I've probably had a dozen CTs and only about 3 PETs.  Each time I got a PET it was to see if we could find out any additional info on a particular area of concern.  PETs can also sometimes help find things that CTs can't due to the glowing effect that PETs give to melanoma.

                                                                  Here's a brief summary of CTs and PETs:

                                                                  Positron emission tomography (PET) and computerized tomography (CT) are both state-of-the-art imaging tools that allow physicians to pinpoint the location of cancer within the body before making treatment recommendations. The highly sensitive PET scan images the biology of disorders at the molecular level, while the CT scan provides a detailed picture of the body's internal anatomy. The PET/CT scan combines the strengths of these two well-established imaging modalities into a single scan.

                                                                  A CT scan is able to detect and localize changes in the body structure or anatomy, such as the size, shape and exact location of an abnormal growth, a sizeable tumor or a musculoskeletal injury.

                                                                  A PET scan is very different from an ultrasound, X-ray, MRI, or CT scan. A PET scan allows the physician to distinguish between living and dead tissue or between benign and malignant disorders. Since a PET scan images the biology of disorders at the molecular level, it can help the physician detect abnormalities in cellular activity at a very early stage, generally before anatomic changes are visible.

                                                                  Alone, each imaging test has particular benefits and limitations but by combining these two state-of the-art technologies, physicians can more accurately diagnose, localize and monitor cancer, as well as heart disease and certain brain disorders.

                                                                  Good luck Peggy.  Glad to hear you are going to a melanoma specialist.

                                                                   

                                                                    Mamapegela
                                                                    Participant

                                                                      Thank you for taking the time to clarify these scans.  I've had both my MRI and CT scans and now just am waiting, waiting for my appointment at the melanoma clinic.  

                                                                      I certainly have found this forum to be most helpful and it is comforting just to know there are many others going through similar experiences and doing so well.

                                                                      Thanks again!

                                                                       

                                                                      Mamapegela
                                                                      Participant

                                                                        Thank you for taking the time to clarify these scans.  I've had both my MRI and CT scans and now just am waiting, waiting for my appointment at the melanoma clinic.  

                                                                        I certainly have found this forum to be most helpful and it is comforting just to know there are many others going through similar experiences and doing so well.

                                                                        Thanks again!

                                                                         

                                                                        Mamapegela
                                                                        Participant

                                                                          Thank you for taking the time to clarify these scans.  I've had both my MRI and CT scans and now just am waiting, waiting for my appointment at the melanoma clinic.  

                                                                          I certainly have found this forum to be most helpful and it is comforting just to know there are many others going through similar experiences and doing so well.

                                                                          Thanks again!

                                                                           

                                                                        BrianP
                                                                        Participant

                                                                          Peggy,

                                                                          I think it's pretty "standard" to order the CT first.  There are some advantages and disadvantages to both but cost may be one of the factors.  It's my understanding that PETs cost more than CTs.

                                                                          Over the course of the last 3 years I've probably had a dozen CTs and only about 3 PETs.  Each time I got a PET it was to see if we could find out any additional info on a particular area of concern.  PETs can also sometimes help find things that CTs can't due to the glowing effect that PETs give to melanoma.

                                                                          Here's a brief summary of CTs and PETs:

                                                                          Positron emission tomography (PET) and computerized tomography (CT) are both state-of-the-art imaging tools that allow physicians to pinpoint the location of cancer within the body before making treatment recommendations. The highly sensitive PET scan images the biology of disorders at the molecular level, while the CT scan provides a detailed picture of the body's internal anatomy. The PET/CT scan combines the strengths of these two well-established imaging modalities into a single scan.

                                                                          A CT scan is able to detect and localize changes in the body structure or anatomy, such as the size, shape and exact location of an abnormal growth, a sizeable tumor or a musculoskeletal injury.

                                                                          A PET scan is very different from an ultrasound, X-ray, MRI, or CT scan. A PET scan allows the physician to distinguish between living and dead tissue or between benign and malignant disorders. Since a PET scan images the biology of disorders at the molecular level, it can help the physician detect abnormalities in cellular activity at a very early stage, generally before anatomic changes are visible.

                                                                          Alone, each imaging test has particular benefits and limitations but by combining these two state-of the-art technologies, physicians can more accurately diagnose, localize and monitor cancer, as well as heart disease and certain brain disorders.

                                                                          Good luck Peggy.  Glad to hear you are going to a melanoma specialist.

                                                                           

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