Weird Fluid

Forums General Melanoma Community Weird Fluid

  • Post
    _Paul_
    Participant

      Things were simply going too well, so like a dumb-ass I had to toss a fly into the ointment. Ever since receiving the TIL my breathing has been somewhat labored and crossing streets and whatnot would feel like I was maxed out.

      I was supposed to be driving back to Seattle from LA yesterday,  but I thought I should take care of the breathing first. So I went to the ER at Cedars-Sinai for what I was hoping would just be a jug of oxygen. They did an X-ray, then a CT  (during which time someone in the ER helped themselves to $800 from my wallet).

      Results showed fluid surrounding lungs and heart.  So yesterday, in a procedure that is certainly up there with medicine's rather unpleasant, 300ml was drained from my right lungs via a needle, while awake. They are now testing me to see if the sac surrounding my heart should also be drained.

      Once I get past this little setback then I can get consented and started with the trial. I will be very happy when that gets going.

      In the meantime,  things are progressing with the visa for my fiance, Pilar, although glaciers move faster than the US beauracracy.

      – Paul

    Viewing 17 reply threads
    • Replies
        Aloha14
        Participant

          I'm sorry to hear about your recent complications. I hope all goes smooth for you going forward. 

          Aloha14
          Participant

            I'm sorry to hear about your recent complications. I hope all goes smooth for you going forward. 

            Aloha14
            Participant

              I'm sorry to hear about your recent complications. I hope all goes smooth for you going forward. 

              Casitas1
              Participant
                Dang Paul, wish the thief had taken your Melanoma while he was at it. Good luck with your upcoming trial.
                Casitas1
                Participant
                  Dang Paul, wish the thief had taken your Melanoma while he was at it. Good luck with your upcoming trial.
                  Casitas1
                  Participant
                    Dang Paul, wish the thief had taken your Melanoma while he was at it. Good luck with your upcoming trial.
                    Bubbles
                    Participant

                      So sorry, Paulster!  Jeeze!  Drain the swamp!!!  I have soooo many out of control feelings about that sentence…but in this case….get her done!!!  I can't tell if you were actually dealing with a thief…or just the billing system here in the US re: your lightening your wallet by $800 bucks!  Either way…that sucks!  Hang in there and get better quick!! Much love and hugs!  c

                      Bubbles
                      Participant

                        So sorry, Paulster!  Jeeze!  Drain the swamp!!!  I have soooo many out of control feelings about that sentence…but in this case….get her done!!!  I can't tell if you were actually dealing with a thief…or just the billing system here in the US re: your lightening your wallet by $800 bucks!  Either way…that sucks!  Hang in there and get better quick!! Much love and hugs!  c

                        Bubbles
                        Participant

                          So sorry, Paulster!  Jeeze!  Drain the swamp!!!  I have soooo many out of control feelings about that sentence…but in this case….get her done!!!  I can't tell if you were actually dealing with a thief…or just the billing system here in the US re: your lightening your wallet by $800 bucks!  Either way…that sucks!  Hang in there and get better quick!! Much love and hugs!  c

                          snow white
                          Participant

                            I can't believe some heartless jerk would steal money from someone while they are in the ER!!!  That just burns me up!!!!  I am so glad that they were able to drain that fluid, and hopefully you can get on with the show!  Keep in touch, you have my number ๐Ÿ™‚

                            xo Jen

                            snow white
                            Participant

                              I can't believe some heartless jerk would steal money from someone while they are in the ER!!!  That just burns me up!!!!  I am so glad that they were able to drain that fluid, and hopefully you can get on with the show!  Keep in touch, you have my number ๐Ÿ™‚

                              xo Jen

                              snow white
                              Participant

                                I can't believe some heartless jerk would steal money from someone while they are in the ER!!!  That just burns me up!!!!  I am so glad that they were able to drain that fluid, and hopefully you can get on with the show!  Keep in touch, you have my number ๐Ÿ™‚

                                xo Jen

                                cancersnewnormal
                                Participant

                                  Ahhhh! What a horrible experience! I'm happy to read that you had the sense to go get things checked out, prior to loading into the car for the long haul back home. Some of us are a bit more thick headed about ER visits. Sorry about the need for fluid drainging. Nobody ever informs you that a human can actually FEEL things on the inside of their chest cavity. OUCH! Hoping your ointment remains insect free from here on out! Aaaaand hoping that the winds of karma come sweeping through on the sticky fingers that made off with your dough!

                                  cancersnewnormal
                                  Participant

                                    Ahhhh! What a horrible experience! I'm happy to read that you had the sense to go get things checked out, prior to loading into the car for the long haul back home. Some of us are a bit more thick headed about ER visits. Sorry about the need for fluid drainging. Nobody ever informs you that a human can actually FEEL things on the inside of their chest cavity. OUCH! Hoping your ointment remains insect free from here on out! Aaaaand hoping that the winds of karma come sweeping through on the sticky fingers that made off with your dough!

                                    cancersnewnormal
                                    Participant

                                      Ahhhh! What a horrible experience! I'm happy to read that you had the sense to go get things checked out, prior to loading into the car for the long haul back home. Some of us are a bit more thick headed about ER visits. Sorry about the need for fluid drainging. Nobody ever informs you that a human can actually FEEL things on the inside of their chest cavity. OUCH! Hoping your ointment remains insect free from here on out! Aaaaand hoping that the winds of karma come sweeping through on the sticky fingers that made off with your dough!

                                      Scooby123
                                      Participant

                                        So sorry Paul you having to deal with that, but get that sorted then get going on to trial. 

                                        Big hugs and energy sent your way.

                                        scooby x

                                        Scooby123
                                        Participant

                                          So sorry Paul you having to deal with that, but get that sorted then get going on to trial. 

                                          Big hugs and energy sent your way.

                                          scooby x

                                          Scooby123
                                          Participant

                                            So sorry Paul you having to deal with that, but get that sorted then get going on to trial. 

                                            Big hugs and energy sent your way.

                                            scooby x

                                        Viewing 17 reply threads
                                        • You must be logged in to reply to this topic.
                                        About the MRF Patient Forum

                                        The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                        The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide byย MRF posting policies.

                                        Popular Topics