Update on my News, Zel and DPCP

› Forums › General Melanoma Community › Update on my News, Zel and DPCP

  • Post
    • December 13, 2012 at 6:15 pm
    NYKaren
    Participant

      So I saw Dr. Kruger @ Rockefeller this a.m. 

      at first he said I should discontinue the DPCP upon starting Zel, but upon further reflection he said that for MY benefit, he would like to see me continue it.  Obviously my results will no longer be germane to his trial, but it's extremely nice that he's letting me continue using it.  They biopsied healthy skin treated w/DPCP and it is showing immune response.  Today he biopsied a mel met that's being treated. 

      So I saw Dr. Kruger @ Rockefeller this a.m. 

      at first he said I should discontinue the DPCP upon starting Zel, but upon further reflection he said that for MY benefit, he would like to see me continue it.  Obviously my results will no longer be germane to his trial, but it's extremely nice that he's letting me continue using it.  They biopsied healthy skin treated w/DPCP and it is showing immune response.  Today he biopsied a mel met that's being treated. 

      I have a meeting scheduled w/Dr. Wolchok's nurse on Monday, and soon after I will receive the Zel pills in the mail.

      I hope that the combo will deliver my mel a real knockout punch, cause it sure needs it!

      Happy holidays to all.

      karen

    Viewing 8 reply threads
    • Replies
        • December 13, 2012 at 11:00 pm
        aldakota22
        Participant

          Hoping that the combo.will kick butt twice over.Let us know how you are doing on "Z".Praying it works just as well for you as it does me.Beat the Beast.  Al

          • December 13, 2012 at 11:00 pm
          aldakota22
          Participant

            Hoping that the combo.will kick butt twice over.Let us know how you are doing on "Z".Praying it works just as well for you as it does me.Beat the Beast.  Al

            • December 13, 2012 at 11:00 pm
            aldakota22
            Participant

              Hoping that the combo.will kick butt twice over.Let us know how you are doing on "Z".Praying it works just as well for you as it does me.Beat the Beast.  Al

              • December 14, 2012 at 4:35 pm
              Tina D
              Participant

                That is good news. Hoping this will be the TKO punch for your mel!!!  And, then we will all just say…GOOD RIDDANCE!!  Sounds like you are responding well and things are heading in that direction!

                Tina

                • December 14, 2012 at 4:35 pm
                Tina D
                Participant

                  That is good news. Hoping this will be the TKO punch for your mel!!!  And, then we will all just say…GOOD RIDDANCE!!  Sounds like you are responding well and things are heading in that direction!

                  Tina

                  • December 14, 2012 at 4:35 pm
                  Tina D
                  Participant

                    That is good news. Hoping this will be the TKO punch for your mel!!!  And, then we will all just say…GOOD RIDDANCE!!  Sounds like you are responding well and things are heading in that direction!

                    Tina

                    • December 14, 2012 at 9:18 pm
                    JerryfromFauq
                    Participant

                      Nice to see someone do a double attack when one thing is helping.  Most Onces won't mix trials.

                        • December 15, 2012 at 11:07 pm
                        NYKaren
                        Participant
                          Thanks my friends.
                          Jerry, you are correct. I won’t really be in the DPCP trial because they won’t be able to count my results. It’s amazing… I’ve only applied the DPCP to the tip of my ear canal twice, but the ear doc yesterday said there is significant necrosis in the canal. Must have to do with the environment in there because nothing in my face or scalp has been that dramatic. It’s only the amazing doc @ Rockefeller University’s amazing kindness that’s keeping me on the DPCP.
                          I hope you guys are right, maybe this will be the knockout punch!
                          Best,
                          Karen
                          • December 15, 2012 at 11:07 pm
                          NYKaren
                          Participant
                            Thanks my friends.
                            Jerry, you are correct. I won’t really be in the DPCP trial because they won’t be able to count my results. It’s amazing… I’ve only applied the DPCP to the tip of my ear canal twice, but the ear doc yesterday said there is significant necrosis in the canal. Must have to do with the environment in there because nothing in my face or scalp has been that dramatic. It’s only the amazing doc @ Rockefeller University’s amazing kindness that’s keeping me on the DPCP.
                            I hope you guys are right, maybe this will be the knockout punch!
                            Best,
                            Karen
                            • December 15, 2012 at 11:07 pm
                            NYKaren
                            Participant
                              Thanks my friends.
                              Jerry, you are correct. I won’t really be in the DPCP trial because they won’t be able to count my results. It’s amazing… I’ve only applied the DPCP to the tip of my ear canal twice, but the ear doc yesterday said there is significant necrosis in the canal. Must have to do with the environment in there because nothing in my face or scalp has been that dramatic. It’s only the amazing doc @ Rockefeller University’s amazing kindness that’s keeping me on the DPCP.
                              I hope you guys are right, maybe this will be the knockout punch!
                              Best,
                              Karen
                            • December 14, 2012 at 9:18 pm
                            JerryfromFauq
                            Participant

                              Nice to see someone do a double attack when one thing is helping.  Most Onces won't mix trials.

                              • December 14, 2012 at 9:18 pm
                              JerryfromFauq
                              Participant

                                Nice to see someone do a double attack when one thing is helping.  Most Onces won't mix trials.

                            Viewing 8 reply threads
                            • You must be logged in to reply to this topic.
                            About the MRF Patient Forum

                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                            Popular Topics