Update

  • Post
    Julie in SoCal
    Participant

      Hi there Friends!

      Yesterday I had Pembro infusion #5 and it seems to be working!  When I started this round, I could feel four pea to grape sized in-transits, now I can't find any! Rock Star Doc couldn't find any either (and he's the expert!!!).  So we did the happy dance as he writes NED (no evidence of disease) on my chart again.

      The other news is that my Rock Star Doc has moved to a different hospital and they're still getting everything set up for infusions. Their temporary solution has been to use the VIP rooms–nice, big room to myself, private nurses, coffee or tea, and a TV to watch if I so desired. Rock Star Doc said not to get used to it…that might be difficult wink emoticon

       

       

      Wishing you all NED!

       

       

      Shalom!

       

    Viewing 23 reply threads
    • Replies
        DianaD
        Participant

          Hi, Julie.  I'm new on this forum.  So glad to read about your Happy News!  May it continue….

           

          DianaD

          DianaD
          Participant

            Hi, Julie.  I'm new on this forum.  So glad to read about your Happy News!  May it continue….

             

            DianaD

            DianaD
            Participant

              Hi, Julie.  I'm new on this forum.  So glad to read about your Happy News!  May it continue….

               

              DianaD

              arthurjedi007
              Participant

                Sounds great.

                Artie

                arthurjedi007
                Participant

                  Sounds great.

                  Artie

                  arthurjedi007
                  Participant

                    Sounds great.

                    Artie

                    SABKLYN
                    Participant

                      fabulous!

                      SABKLYN
                      Participant

                        fabulous!

                        SABKLYN
                        Participant

                          fabulous!

                          DZnDef
                          Participant

                            Very happy that our Rock Star Doc is doing right by you!  I haven't tried to see him since he relocated.  Did he take your records with him?  Or did you have to sign up like a "new" patient all over again at the new location?  I am really really happy for you, Julie!

                            Cheers – Maggie

                            DZnDef
                            Participant

                              Very happy that our Rock Star Doc is doing right by you!  I haven't tried to see him since he relocated.  Did he take your records with him?  Or did you have to sign up like a "new" patient all over again at the new location?  I am really really happy for you, Julie!

                              Cheers – Maggie

                              DZnDef
                              Participant

                                Very happy that our Rock Star Doc is doing right by you!  I haven't tried to see him since he relocated.  Did he take your records with him?  Or did you have to sign up like a "new" patient all over again at the new location?  I am really really happy for you, Julie!

                                Cheers – Maggie

                                  Julie in SoCal
                                  Participant

                                    Hi Maggie,

                                    I brought my records with me, and had them sent over from the other place, but of course the hospital still has all their forms that new patients have to fill out.  

                                    Julie

                                    Julie in SoCal
                                    Participant

                                      Hi Maggie,

                                      I brought my records with me, and had them sent over from the other place, but of course the hospital still has all their forms that new patients have to fill out.  

                                      Julie

                                      Julie in SoCal
                                      Participant

                                        Hi Maggie,

                                        I brought my records with me, and had them sent over from the other place, but of course the hospital still has all their forms that new patients have to fill out.  

                                        Julie

                                      _Paul_
                                      Participant

                                        Awesome news Julie! Now let's hope you stay that way!

                                        – Paul.

                                        _Paul_
                                        Participant

                                          Awesome news Julie! Now let's hope you stay that way!

                                          – Paul.

                                          _Paul_
                                          Participant

                                            Awesome news Julie! Now let's hope you stay that way!

                                            – Paul.

                                            Swanee
                                            Participant

                                              I'm so happy to check in and read this post from you!  I've followed you for a very long time and always amazed by what you've been through and how you always come back with new vigor and hope!  Today, is a testament of what hope and believing can do and remaining positive and vigilent no matter how hard the journey gets!  You are an inspiration to all of us Julie and I remain hopeful that better days are finally here for you….God knows how much you deserve this day!  Doing a happy dance for you…..

                                              Swanee

                                               

                                                liberty04281
                                                Participant
                                                  It is nice to hear it.
                                                  Good Luck!
                                                  liberty04281
                                                  Participant
                                                    It is nice to hear it.
                                                    Good Luck!
                                                    liberty04281
                                                    Participant
                                                      It is nice to hear it.
                                                      Good Luck!
                                                    Swanee
                                                    Participant

                                                      I'm so happy to check in and read this post from you!  I've followed you for a very long time and always amazed by what you've been through and how you always come back with new vigor and hope!  Today, is a testament of what hope and believing can do and remaining positive and vigilent no matter how hard the journey gets!  You are an inspiration to all of us Julie and I remain hopeful that better days are finally here for you….God knows how much you deserve this day!  Doing a happy dance for you…..

                                                      Swanee

                                                       

                                                      Swanee
                                                      Participant

                                                        I'm so happy to check in and read this post from you!  I've followed you for a very long time and always amazed by what you've been through and how you always come back with new vigor and hope!  Today, is a testament of what hope and believing can do and remaining positive and vigilent no matter how hard the journey gets!  You are an inspiration to all of us Julie and I remain hopeful that better days are finally here for you….God knows how much you deserve this day!  Doing a happy dance for you…..

                                                        Swanee

                                                         

                                                        JoshF
                                                        Participant

                                                          Great Julie…awesome to hear stories like this!!!!! Keep on; keeping on!!!

                                                            killmel
                                                            Participant

                                                              Hi Julie,

                                                              Soooooooooooo Happy for your great news!

                                                              Now that your NED, are you going to continue with your infusions? If yes, how long does your Rock Star want you tocontinue with infusions?

                                                               

                                                               

                                                              killmel
                                                              Participant

                                                                Hi Julie,

                                                                Soooooooooooo Happy for your great news!

                                                                Now that your NED, are you going to continue with your infusions? If yes, how long does your Rock Star want you tocontinue with infusions?

                                                                 

                                                                 

                                                                Julie in SoCal
                                                                Participant

                                                                  Hi Anon,

                                                                  Our plan is for me to do at least a year of Pembro. RS Doc noted that while Pembro seems to be doing the trick for me the question is for how long.  Ipi did the trick too, but within a year Mel was back. So the plan is at least a year of Pembro.  After that who knows?

                                                                  Julie

                                                                  Julie in SoCal
                                                                  Participant

                                                                    Hi Anon,

                                                                    Our plan is for me to do at least a year of Pembro. RS Doc noted that while Pembro seems to be doing the trick for me the question is for how long.  Ipi did the trick too, but within a year Mel was back. So the plan is at least a year of Pembro.  After that who knows?

                                                                    Julie

                                                                    Julie in SoCal
                                                                    Participant

                                                                      Hi Anon,

                                                                      Our plan is for me to do at least a year of Pembro. RS Doc noted that while Pembro seems to be doing the trick for me the question is for how long.  Ipi did the trick too, but within a year Mel was back. So the plan is at least a year of Pembro.  After that who knows?

                                                                      Julie

                                                                      killmel
                                                                      Participant

                                                                        Hi Julie,

                                                                        Soooooooooooo Happy for your great news!

                                                                        Now that your NED, are you going to continue with your infusions? If yes, how long does your Rock Star want you tocontinue with infusions?

                                                                         

                                                                         

                                                                      JoshF
                                                                      Participant

                                                                        Great Julie…awesome to hear stories like this!!!!! Keep on; keeping on!!!

                                                                        JoshF
                                                                        Participant

                                                                          Great Julie…awesome to hear stories like this!!!!! Keep on; keeping on!!!

                                                                          stars
                                                                          Participant

                                                                            Great news, Julie! You're doc truly does sound like a star (or perhaps you are a star patient of his, too). So good to hear pembro is working its magic,

                                                                            Stars

                                                                            stars
                                                                            Participant

                                                                              Great news, Julie! You're doc truly does sound like a star (or perhaps you are a star patient of his, too). So good to hear pembro is working its magic,

                                                                              Stars

                                                                              stars
                                                                              Participant

                                                                                Great news, Julie! You're doc truly does sound like a star (or perhaps you are a star patient of his, too). So good to hear pembro is working its magic,

                                                                                Stars

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