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- This topic has 36 replies, 11 voices, and was last updated 10 years, 7 months ago by
Julie in SoCal.
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- July 28, 2015 at 10:09 pm
Hi there Friends!
Yesterday I had Pembro infusion #5 and it seems to be working! When I started this round, I could feel four pea to grape sized in-transits, now I can't find any! Rock Star Doc couldn't find any either (and he's the expert!!!). So we did the happy dance as he writes NED (no evidence of disease) on my chart again.
The other news is that my Rock Star Doc has moved to a different hospital and they're still getting everything set up for infusions. Their temporary solution has been to use the VIP rooms–nice, big room to myself, private nurses, coffee or tea, and a TV to watch if I so desired. Rock Star Doc said not to get used to it…that might be difficult wink emoticon
Wishing you all NED!
Shalom!
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- July 28, 2015 at 11:32 pm
Sounds great.
Artie
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- July 28, 2015 at 11:32 pm
Sounds great.
Artie
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- July 28, 2015 at 11:32 pm
Sounds great.
Artie
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- July 29, 2015 at 4:17 am
Very happy that our Rock Star Doc is doing right by you! I haven't tried to see him since he relocated. Did he take your records with him? Or did you have to sign up like a "new" patient all over again at the new location? I am really really happy for you, Julie!
Cheers – Maggie
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- July 29, 2015 at 4:17 am
Very happy that our Rock Star Doc is doing right by you! I haven't tried to see him since he relocated. Did he take your records with him? Or did you have to sign up like a "new" patient all over again at the new location? I am really really happy for you, Julie!
Cheers – Maggie
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- July 29, 2015 at 4:17 am
Very happy that our Rock Star Doc is doing right by you! I haven't tried to see him since he relocated. Did he take your records with him? Or did you have to sign up like a "new" patient all over again at the new location? I am really really happy for you, Julie!
Cheers – Maggie
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- July 29, 2015 at 3:18 pm
Hi Maggie,
I brought my records with me, and had them sent over from the other place, but of course the hospital still has all their forms that new patients have to fill out.
Julie
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- July 29, 2015 at 3:18 pm
Hi Maggie,
I brought my records with me, and had them sent over from the other place, but of course the hospital still has all their forms that new patients have to fill out.
Julie
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- July 29, 2015 at 3:18 pm
Hi Maggie,
I brought my records with me, and had them sent over from the other place, but of course the hospital still has all their forms that new patients have to fill out.
Julie
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- July 29, 2015 at 5:41 pm
I'm so happy to check in and read this post from you! I've followed you for a very long time and always amazed by what you've been through and how you always come back with new vigor and hope! Today, is a testament of what hope and believing can do and remaining positive and vigilent no matter how hard the journey gets! You are an inspiration to all of us Julie and I remain hopeful that better days are finally here for you….God knows how much you deserve this day! Doing a happy dance for you…..
Swanee
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- July 29, 2015 at 5:41 pm
I'm so happy to check in and read this post from you! I've followed you for a very long time and always amazed by what you've been through and how you always come back with new vigor and hope! Today, is a testament of what hope and believing can do and remaining positive and vigilent no matter how hard the journey gets! You are an inspiration to all of us Julie and I remain hopeful that better days are finally here for you….God knows how much you deserve this day! Doing a happy dance for you…..
Swanee
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- July 29, 2015 at 5:41 pm
I'm so happy to check in and read this post from you! I've followed you for a very long time and always amazed by what you've been through and how you always come back with new vigor and hope! Today, is a testament of what hope and believing can do and remaining positive and vigilent no matter how hard the journey gets! You are an inspiration to all of us Julie and I remain hopeful that better days are finally here for you….God knows how much you deserve this day! Doing a happy dance for you…..
Swanee
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- July 30, 2015 at 3:21 am
Great Julie…awesome to hear stories like this!!!!! Keep on; keeping on!!!
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- July 31, 2015 at 8:43 pm
Hi Anon,
Our plan is for me to do at least a year of Pembro. RS Doc noted that while Pembro seems to be doing the trick for me the question is for how long. Ipi did the trick too, but within a year Mel was back. So the plan is at least a year of Pembro. After that who knows?
Julie
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- July 31, 2015 at 8:43 pm
Hi Anon,
Our plan is for me to do at least a year of Pembro. RS Doc noted that while Pembro seems to be doing the trick for me the question is for how long. Ipi did the trick too, but within a year Mel was back. So the plan is at least a year of Pembro. After that who knows?
Julie
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- July 31, 2015 at 8:43 pm
Hi Anon,
Our plan is for me to do at least a year of Pembro. RS Doc noted that while Pembro seems to be doing the trick for me the question is for how long. Ipi did the trick too, but within a year Mel was back. So the plan is at least a year of Pembro. After that who knows?
Julie
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