Trials in the US

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  • Post
    • March 30, 2012 at 7:21 am
    deardad
    Participant

      I'm interested whether we should take my dad who has a low tumor burden over to the US and try to get into a ANTIPD1 trial. Is this realistic? Do they take foreigners? Where would you recommend?

      Thanks in advance

      Nahmi

      I'm interested whether we should take my dad who has a low tumor burden over to the US and try to get into a ANTIPD1 trial. Is this realistic? Do they take foreigners? Where would you recommend?

      Thanks in advance

      Nahmi

    Viewing 8 reply threads
    • Replies
        • March 30, 2012 at 5:55 pm
        melmar
        Participant

          I am currently being treated at the Angeles clinic and know of at least two other patients from other countries on various trials. So it is doable, but the anti pd-1 trial, in particular, requires an infusion every other week for a year — requiring a lot of travel or a temporary relocation.  I think it is worth exploring though, if your family can handle the logistical challenge, as the study drug is promising.  Good luck.         

            • April 2, 2012 at 5:56 am
            LynnLuc
            Participant

              I go to Moffitt Cancer Center and have Dr Jeff Weber. They have many people coming in from all over the world!  I am on the anti pd 1 trail- I got anti pd 1  every other week for 24 weeks and now in the booster phase getting it once every 3 months.I am suppose to do boosters for at least 2 years- thats 8 times in 2 years.

               I have been in the trial for over 76 weeks and  I am also NED 2 years and 6 days.

              • April 2, 2012 at 5:56 am
              LynnLuc
              Participant

                I go to Moffitt Cancer Center and have Dr Jeff Weber. They have many people coming in from all over the world!  I am on the anti pd 1 trail- I got anti pd 1  every other week for 24 weeks and now in the booster phase getting it once every 3 months.I am suppose to do boosters for at least 2 years- thats 8 times in 2 years.

                 I have been in the trial for over 76 weeks and  I am also NED 2 years and 6 days.

                • April 2, 2012 at 5:56 am
                LynnLuc
                Participant

                  I go to Moffitt Cancer Center and have Dr Jeff Weber. They have many people coming in from all over the world!  I am on the anti pd 1 trail- I got anti pd 1  every other week for 24 weeks and now in the booster phase getting it once every 3 months.I am suppose to do boosters for at least 2 years- thats 8 times in 2 years.

                   I have been in the trial for over 76 weeks and  I am also NED 2 years and 6 days.

                • March 30, 2012 at 5:55 pm
                melmar
                Participant

                  I am currently being treated at the Angeles clinic and know of at least two other patients from other countries on various trials. So it is doable, but the anti pd-1 trial, in particular, requires an infusion every other week for a year — requiring a lot of travel or a temporary relocation.  I think it is worth exploring though, if your family can handle the logistical challenge, as the study drug is promising.  Good luck.         

                  • March 30, 2012 at 5:55 pm
                  melmar
                  Participant

                    I am currently being treated at the Angeles clinic and know of at least two other patients from other countries on various trials. So it is doable, but the anti pd-1 trial, in particular, requires an infusion every other week for a year — requiring a lot of travel or a temporary relocation.  I think it is worth exploring though, if your family can handle the logistical challenge, as the study drug is promising.  Good luck.         

                    • March 30, 2012 at 10:58 pm
                    lhaley
                    Participant

                      I know that they would accept people from other countries but for most you have to pay yourself for the scans at the hospital where the trial is given.  If your father has insurance make sure that the hospital would accept it.  Scans are very expensive. 

                      • March 30, 2012 at 10:58 pm
                      lhaley
                      Participant

                        I know that they would accept people from other countries but for most you have to pay yourself for the scans at the hospital where the trial is given.  If your father has insurance make sure that the hospital would accept it.  Scans are very expensive. 

                        • March 30, 2012 at 10:58 pm
                        lhaley
                        Participant

                          I know that they would accept people from other countries but for most you have to pay yourself for the scans at the hospital where the trial is given.  If your father has insurance make sure that the hospital would accept it.  Scans are very expensive. 

                          • March 31, 2012 at 12:47 am
                          FormerCaregiver
                          Participant

                            Nahmi, the general concept is certainly possible. Here is a thread from last year re
                            getting treatment in the States:
                            http://www.melanoma.org/community/mpip-melanoma-patients-information-page/non-us-citizens-participating-us-clinical-trials

                            (If it doesn't work, just copy and paste the link into the address bar of your browser).

                            Take care

                            Frank from Australia  

                            • March 31, 2012 at 12:47 am
                            FormerCaregiver
                            Participant

                              Nahmi, the general concept is certainly possible. Here is a thread from last year re
                              getting treatment in the States:
                              http://www.melanoma.org/community/mpip-melanoma-patients-information-page/non-us-citizens-participating-us-clinical-trials

                              (If it doesn't work, just copy and paste the link into the address bar of your browser).

                              Take care

                              Frank from Australia  

                              • March 31, 2012 at 12:47 am
                              FormerCaregiver
                              Participant

                                Nahmi, the general concept is certainly possible. Here is a thread from last year re
                                getting treatment in the States:
                                http://www.melanoma.org/community/mpip-melanoma-patients-information-page/non-us-citizens-participating-us-clinical-trials

                                (If it doesn't work, just copy and paste the link into the address bar of your browser).

                                Take care

                                Frank from Australia  

                            Viewing 8 reply threads
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