To Wait or Not To Wait

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    • March 14, 2017 at 5:55 am
    RitysMom
    Participant

      My sweet Kristine called me today and said she can now feel two of the tumors. So it's looking like she has stopped responding to Taf/Mek. She has an appt to see a melanoma specialist at MD Anderson on 3/27, but plans to call her local oncologist tomorrow and try to be seen this week. I'm assuming he will start her on immunotherapy…would her starting a new treatment affect her consultation at MDA? Or should she wait two weeks til she's seen by the specialist? Obviously I want her to do whatever it takes to destroy the cancer…I would be thrilled if they surgically removed the remaining tumors tomorrow!

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        • March 16, 2017 at 11:11 pm
        maperny
        Participant

          Hi CindI,

           So sorry that Kristine may not be responding, I would image that some scans will be needed to assess if the Taf/Mek has indeed stopped working and so it would be good to get that process going quickly.  Then she can see what the local oncologist recommends, if it is moving onto the ipi/nivo combo then I suspect this would be the same recommendation as MD Anderson, but of course good to get a second opinion from a melanoma specialist.  As to when to start immunotherapy, think Kristine should decide that based on what the scans say and oncologist recommends.

          Maria

           

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