Still On Zel

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    • February 1, 2013 at 4:04 am
    Mickey n Jo
    Participant

      Saw Dr. Pavlick at NYU on Monday, and due to the mixed results on the last scan, she suggested my husband stay on Zel at 3 and 3 until we get results of his next Pet/CT in another few weeks.  She also felt that this would give him a little more time to build himself up, because in her words, ipi is no "walk in the park".  So far, he's gained a little weight (about 3 lbs) and is feeling better than before, so we're thankful for that.

      Saw Dr. Pavlick at NYU on Monday, and due to the mixed results on the last scan, she suggested my husband stay on Zel at 3 and 3 until we get results of his next Pet/CT in another few weeks.  She also felt that this would give him a little more time to build himself up, because in her words, ipi is no "walk in the park".  So far, he's gained a little weight (about 3 lbs) and is feeling better than before, so we're thankful for that. Asked her about the 4 weeks on and 2 off with Zel, but she didn't seem to be in favor of it, as long as the dosage was tolerable. So for now, we will just take each day as it comes, and pray that the next scan will show either improvement or at least stability. Thinking of, and praying for everyone on this board.

                                                                                  Jo

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    • Replies
        • February 1, 2013 at 3:53 pm
        awillett1991
        Participant
          Jo,

          There certainly are people who get an easy time AND a good response with Ipi. No reason it can’t be him! So glad he’s feeling a little better, thanks or the update!

          Amy

          • February 1, 2013 at 3:53 pm
          awillett1991
          Participant
            Jo,

            There certainly are people who get an easy time AND a good response with Ipi. No reason it can’t be him! So glad he’s feeling a little better, thanks or the update!

            Amy

            • February 1, 2013 at 3:53 pm
            awillett1991
            Participant
              Jo,

              There certainly are people who get an easy time AND a good response with Ipi. No reason it can’t be him! So glad he’s feeling a little better, thanks or the update!

              Amy

              • February 1, 2013 at 3:58 pm
              Gene_S
              Participant

                Hello,

                My husband did not have a bad time with Ipi and he is now NED so here is praying and hoping that it will be the same for your husband.

                Judy (loving wife of Gene Stage IV and now NED)

                • February 1, 2013 at 3:58 pm
                Gene_S
                Participant

                  Hello,

                  My husband did not have a bad time with Ipi and he is now NED so here is praying and hoping that it will be the same for your husband.

                  Judy (loving wife of Gene Stage IV and now NED)

                    • February 2, 2013 at 6:20 am
                    Mickey n Jo
                    Participant

                      Thank you both for the encouragement, hopefully if ipi is the next step he'll tolerate it well. It's a little scary though since he had such bad side effects from the full dosage of Zel, but maybe this will be different.

                                                                          Thanks again,

                                                                                Jo

                      • February 2, 2013 at 6:20 am
                      Mickey n Jo
                      Participant

                        Thank you both for the encouragement, hopefully if ipi is the next step he'll tolerate it well. It's a little scary though since he had such bad side effects from the full dosage of Zel, but maybe this will be different.

                                                                            Thanks again,

                                                                                  Jo

                        • February 2, 2013 at 6:20 am
                        Mickey n Jo
                        Participant

                          Thank you both for the encouragement, hopefully if ipi is the next step he'll tolerate it well. It's a little scary though since he had such bad side effects from the full dosage of Zel, but maybe this will be different.

                                                                              Thanks again,

                                                                                    Jo

                        • February 1, 2013 at 3:58 pm
                        Gene_S
                        Participant

                          Hello,

                          My husband did not have a bad time with Ipi and he is now NED so here is praying and hoping that it will be the same for your husband.

                          Judy (loving wife of Gene Stage IV and now NED)

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