Still in the clear

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  • Post
    • March 29, 2012 at 3:36 pm
    Janis UK
    Participant

      Hi folks, It has been about 3 years, or perhaps longer since my last post. I used to post every year on the anniversary of my NED status but as time has passed Melanoma is way down on my list of prioraties….hard to believe I know, but this is how I feel. The MPIP has changed so much since I last posted that I have had to reregister. I am not sure if all my previous post are retrievable for any of you to read but I am still NED and being diagnoised in 2001 stage 3b I am pleased to say life is good. My children have married and I am now a Granny six times over.

      Hi folks, It has been about 3 years, or perhaps longer since my last post. I used to post every year on the anniversary of my NED status but as time has passed Melanoma is way down on my list of prioraties….hard to believe I know, but this is how I feel. The MPIP has changed so much since I last posted that I have had to reregister. I am not sure if all my previous post are retrievable for any of you to read but I am still NED and being diagnoised in 2001 stage 3b I am pleased to say life is good. My children have married and I am now a Granny six times over. Melanona is a horrible cruel disease  but in many cases it can be life changing and not life ending. My thoughts , love and hope go to all those fighting, waiting, recovering and most importanly living  

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    • Replies
        • March 29, 2012 at 3:39 pm
        natasha
        Participant

          Hi Janis !!

              I see from your profile you are from UK.

            I am from UK as weel ,Cambridge.

            My name is Natasha and I was diagnosed this year.

           I am so happy to hear you just don't think a lot of your melanoma ,because things are going well!!!:)

           Could you let me know ,which treatments did you have?

          • March 29, 2012 at 3:39 pm
          natasha
          Participant

            Hi Janis !!

                I see from your profile you are from UK.

              I am from UK as weel ,Cambridge.

              My name is Natasha and I was diagnosed this year.

             I am so happy to hear you just don't think a lot of your melanoma ,because things are going well!!!:)

             Could you let me know ,which treatments did you have?

            • March 29, 2012 at 3:39 pm
            natasha
            Participant

              Hi Janis !!

                  I see from your profile you are from UK.

                I am from UK as weel ,Cambridge.

                My name is Natasha and I was diagnosed this year.

               I am so happy to hear you just don't think a lot of your melanoma ,because things are going well!!!:)

               Could you let me know ,which treatments did you have?

              • March 29, 2012 at 4:03 pm
              Janis UK
              Participant

                Hi , I was on a drug trial for Interferon, it was a five year trial but I only managed 5 months I personally found the side effects just too debilitating. Try and read my old post, they maybe under  janisUK or UKjanis try using lower and uppers case. I posted regularly, especially when things were not going so well. I wish you all the best. Do not hesitate to post to me if I can be of help. 

                • March 29, 2012 at 4:03 pm
                Janis UK
                Participant

                  Hi , I was on a drug trial for Interferon, it was a five year trial but I only managed 5 months I personally found the side effects just too debilitating. Try and read my old post, they maybe under  janisUK or UKjanis try using lower and uppers case. I posted regularly, especially when things were not going so well. I wish you all the best. Do not hesitate to post to me if I can be of help. 

                  • March 29, 2012 at 4:03 pm
                  Janis UK
                  Participant

                    Hi , I was on a drug trial for Interferon, it was a five year trial but I only managed 5 months I personally found the side effects just too debilitating. Try and read my old post, they maybe under  janisUK or UKjanis try using lower and uppers case. I posted regularly, especially when things were not going so well. I wish you all the best. Do not hesitate to post to me if I can be of help. 

                    • March 29, 2012 at 6:52 pm
                    Mandi0280
                    Participant

                      Wow!  I love when ppl post on here that have such an inspiring story! My husband was diagnosed about  months ago and is now faced with the decision to take interferon after already being on another study that made hiim too sick to continue. Did you have ulceration? He is really not wanting to do the interferon but I would hate for him not to. Thanks for any input! & congrats on being NED for soooo long!

                      Mandi

                      • March 29, 2012 at 6:52 pm
                      Mandi0280
                      Participant

                        Wow!  I love when ppl post on here that have such an inspiring story! My husband was diagnosed about  months ago and is now faced with the decision to take interferon after already being on another study that made hiim too sick to continue. Did you have ulceration? He is really not wanting to do the interferon but I would hate for him not to. Thanks for any input! & congrats on being NED for soooo long!

                        Mandi

                        • March 29, 2012 at 6:52 pm
                        Mandi0280
                        Participant

                          Wow!  I love when ppl post on here that have such an inspiring story! My husband was diagnosed about  months ago and is now faced with the decision to take interferon after already being on another study that made hiim too sick to continue. Did you have ulceration? He is really not wanting to do the interferon but I would hate for him not to. Thanks for any input! & congrats on being NED for soooo long!

                          Mandi

                          • March 29, 2012 at 8:47 pm
                          JerryfromFauq
                          Participant

                            Janis can you find any of your old posts at:

                            http://www.melanoma.org/community/archived-mrf-bulletin-board

                            All the old post back to the mid 1990's should be available there.

                             

                            Good post and keep on going!

                            • March 29, 2012 at 8:47 pm
                            JerryfromFauq
                            Participant

                              Janis can you find any of your old posts at:

                              http://www.melanoma.org/community/archived-mrf-bulletin-board

                              All the old post back to the mid 1990's should be available there.

                               

                              Good post and keep on going!

                              • March 29, 2012 at 8:47 pm
                              JerryfromFauq
                              Participant

                                Janis can you find any of your old posts at:

                                http://www.melanoma.org/community/archived-mrf-bulletin-board

                                All the old post back to the mid 1990's should be available there.

                                 

                                Good post and keep on going!

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